Tom GK in Lockdown
22 May 2020
Hi, I'm Tom. I am a freelance journalist, comedian and proud custodian of literally dozens of non-cancerous tumours. I'm 33 and live in Brixton and, well, there's really very little more to say.
So now the cat is out of the bag. Now everyone knows what I've known ever since I was diagnosed with NF2 eight years ago: our doctors and nurses are AMAZING. It might have looked weird at the time but maybe I should have been spending my Thursday evenings clapping outside since my very first MRI scan. All by myself. Sorry about that, guys.
The lockdown has been a funny old thing, really. In some ways it has been frustrating (of course), as life has been paused and plans have been binned. I think for someone who can struggle not to have my life dictated by illness, and particularly treasures the times that going out is easy, this has been frustrating. Yet it's also been a brilliant opportunity to - cliche alert - really learn to love the small things in life. Whether it's actually speaking to that friend who you haven't spoken with since 2013, enjoying the slow arrival of spring or mastering the art of sourdough bread. These are things that transcend worries about jobs and money and careers and having the worst disease ever.
Having NF2 can be a lonely business and it can be hard to do what we really should be doing: living everyday for the moment.
![](/images/common/WNF2Day2_-_Tom_1_1024x768.jpg)
I think it's something that the "Cancer People" (I'm determined to turn this into a rivalry) do better than us with their bucket lists and things, to be honest. But now there are 60-odd million people in Britain who have all learned how precious and fragile life is, all at the same time. Maybe now we can all learn to live for the present a little more. Going back to my "Cancer vs NF2" rivalry idea, I've even come up with a slogan: "Cancer might be annoying but NF2 really gets on your nerves". I think the whole idea really has promise.
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Artboard_5_800_600_s_c1.jpg)
Coronavirus and your Mental Health
Mind offers support and advice to help you cope with the impacts of Coronavirus on your mental health and wellbeing.
Read More![](https://nervetumours.org.uk/images/made/images/common/Karen_OneMoreNurse_Mask_Campaign-blackwhite_.37402105_800_600_s_c1.jpg)
2nd Lockdown Announcement
A message from Karen our Charity Director on a 2nd national lockdown - we're here for you
Read More![](https://nervetumours.org.uk/images/made/images/common/Dexter_Parker_370x280_800_600_s_c1.png)
Dexter’s Story
A journey of acceptance with NF1 and understanding that what makes us different from one another is a gift.
Read More![](https://nervetumours.org.uk/images/made/images/common/OneMoreNurse_Mask_Campaign_Website_Header_370x280_800_600_s_c1.png)
#OneMoreNurse
Help support our Campaign, we need your ongoing support now more than ever to continue our vital Specialist NF Network
Read More![](https://nervetumours.org.uk/images/made/images/common/Student_voice_prize_website_header_370x280_800_600_s_c1.png)
#DareToThinkRare
Find out how you can take part in this year's Student Voice Prize 7th annual, international essay competition!
Read More![](https://nervetumours.org.uk/images/made/images/common/global-genes-logo-registered_370x280_800_600_s_c1.png)
RARE Champion of Hope Celebration
Join this years RARE Champion of Hope Awards hosted by Global Genes and be inspired!
Read More![](https://nervetumours.org.uk/images/made/images/common/DSC_0096_London_Marathon_2019_-_Group_photo_preview_website_370x280_800_600_s_c1.png)
A Big “Thanks” for Team Nerve Tumours UK running the London 2020 Marathon!
We want to give a great big thank you to all of you who took part in this year's Virtual London Marathon!
Read More![](https://nervetumours.org.uk/images/made/images/common/NTUK_video_thumbnail_high_res_370x280_800_600_s_c1.png)
How To Use Lipspeakers – Support For Those Affected By Hearing Loss
Frances Harris at Bridge Lipspeaking shares how lipspeaking can help those with hearing loss or total deafness caused by NF2
Read More![](https://nervetumours.org.uk/images/made/images/common/Oxford_University_(Naomis_photo)_370x280_800_600_s_c1.png)
Living with Neurofibromatosis Type 1: An Anthropological Study
Get involved and share your story to help increase cross-cultural understanding and awareness of NF1
Read More