Helpline 07939 046 030

Tom GK in Lockdown

22 May 2020

Hi, I'm Tom. I am a freelance journalist, comedian and proud custodian of literally dozens of non-cancerous tumours. I'm 33 and live in Brixton and, well, there's really very little more to say. 

So now the cat is out of the bag. Now everyone knows what I've known ever since I was diagnosed with NF2 eight years ago: our doctors and nurses are AMAZING. It might have looked weird at the time but maybe I should have been spending my Thursday evenings clapping outside since my very first MRI scan. All by myself. Sorry about that, guys.

The lockdown has been a funny old thing, really. In some ways it has been frustrating (of course), as life has been paused and plans have been binned. I think for someone who can struggle not to have my life dictated by illness, and particularly treasures the times that going out is easy, this has been frustrating. Yet it's also been a brilliant opportunity to - cliche alert - really learn to love the small things in life. Whether it's actually speaking to that friend who you haven't spoken with since 2013, enjoying the slow arrival of spring or mastering the art of sourdough bread. These are things that transcend worries about jobs and money and careers and having the worst disease ever. 

Having NF2 can be a lonely business and it can be hard to do what we really should be doing: living everyday for the moment.

I think it's something that the "Cancer People" (I'm determined to turn this into a rivalry) do better than us with their bucket lists and things, to be honest. But now there are 60-odd million people in Britain who have all learned how precious and fragile life is, all at the same time. Maybe now we can all learn to live for the present a little more. Going back to my "Cancer vs NF2" rivalry idea, I've even come up with a slogan: "Cancer might be annoying but NF2 really gets on your nerves". I think the whole idea really has promise.

Filter News

Filter by Date
Category
Reset

Statement by Samantha Gaden our Specialist Neurofibromatosis Nurse UK

A statement on coronavirus by Samantha Gaden specialist Neurofibromatosis nurse in the North West

Read More

Statement by Melanie Murrell our Specialist Neurofibromatosis Nurse UK

A statement on coronavirus by Melanie Murrell specialist Neurofibromatosis nurse in the West Midlands

Read More

Statement by Carolyn Smyth Lead Specialist Neurofibromatosis Nurse UK

A Statement on Coronavirus by Carolyn Smyth Lead Specialist Neurofibromatosis Nurse UK

Read More

COVID - 19 News from Children’s Tumour Foundation our partners in the US

Covid - 19 News from Children's Tumour Foundation our partners in the US

Read More

Working For The NF Community and Helping to Protect and Save The NHS

Coronavirus is impacting the NHS heavily including our Specialist NF Nurses; help us support them, find out how

Read More

Leighton Linslade Rotary Club hosts Brains of Leighton Buzzard Quiz

Leighton Linslade Rotary Club hosts Quiz in aid of Neurofibromatosis type 2, find out more here

Read More

Chloe’s Story

Read Chloe's story with NF and her incredible journey into Adult Nursing

Read More

Postponed: Medicine and Me: Living with Nerve Tumours at the Royal Society of Medicine

Postponed: Find out more about the event at the Medicine & Me event at the Royal Society of Medicine here:

Read More

NF1 Teenager Support Day!

Bridie Windsor is a Deputy Clinical Nurse Specialist who has organised a support day for teenagers with NF1. Read more here:

Read More