Teagan Martin's first day at Canterbury Secondary School

“Charity Shave Off” for NF in Northern Ireland

Janice and her family recently held a charity shave off in Northern Ireland. Find out more about the event here:

Blackpool Magic Convention 2020

Find out more about the convention in aid of NTUK and how you can get involved here:

Reflections on 2019

Check out our reflection on what we feel was an incredibly succesful 2019 for the charity:

Helen’s Story as told by her Mum Pauline

Due to her NF1, Helen has faced several struggles. Mum Pauline has openly shared her daughter's experiences with us here:

Nicola’s NF2 Journey

Nicola creates her own YouTube videos to help promote NF2 awareness. Find out more about her NF2 journey here:

Making the Future of Work inclusive of persons with disability

Check out James' recent presentation at a conference in Geneva highlighting issues of "face equality" in the workplace

The Royal Society - A Quest for the perfect Human…? A debate on the implications of human genome editing

Find out more about the debate recently undertaken at The Royal Society here:

Appearance Matters: Prof Diana Harcourt and Maia Thornton

Find out both Diana's and Maia's views on their work and the importance of their work for people with NF:

Jane Frances

Here Jane Frances tells us how findings from psychological research can help parents and teachers of children with NF

Teagan Martin’s first day at Canterbury Secondary School