Talking about Neurofibromatosis A Guide for Teens
07 August 2019
Talking about Neurofibromatosis A Guide for Teens
A new incredibly informative and useful brochure, aimed at helping teens, provided through the generosity of the Doris and Donald Schnuck Fund for Children in Need and the St. Louis Children’s Hospital Foundation has been released and you can find it by clicking on the button below.
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Kate “NF1 Mummy” Your Questions on parenting answered: World Neurofibromatosis Day 17 May 2021
Have you got questions about your child’s NF diagnosis? Send them into us for World NF Awareness Day
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Jo’s 160 Mile walk for NTUK!
Read Jo's Story as she prepares to take on a 160 mile epic walking challenge for Nerve Tumours UK.
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NF2 & Identity Research Study
If you have NF2, Suzi want's to hear from you! Find out more about her research study relating identity & NF2
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Challenge 100 – Everyone’s invited
Take on 100 of anything you can think of and fundraise to support our NF community!
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A very “Happy Easter” to you all!
A message from Karen, our Charity Director, wishing you all a very Happy Easter!
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Stuart & William’s Story: Turning blue for World NF Month
Check out Stuart & William's creative fundraiser for World Neurofibromatosis Awareness Month
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Coordinated Care of Rare Diseases Study at UCL
Find out the results to the Coordinated Care of Rare Diseases Study at UCL
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Who is exempt from wearing a face mask? UK exemptions rules explained - and how to get a hidden disabilities exemption
Find out the up to date information on face mask rules in your area
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Carers Rights Day. Diane’s Story
Find out more about Diane's life as a carer and how more should be done for unpaid carers in the UK
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