Talking about Neurofibromatosis A Guide for Teens
07 August 2019
Talking about Neurofibromatosis A Guide for Teens
A new incredibly informative and useful brochure, aimed at helping teens, provided through the generosity of the Doris and Donald Schnuck Fund for Children in Need and the St. Louis Children’s Hospital Foundation has been released and you can find it by clicking on the button below.
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Tate’s Shine A Light Marathon
Tate's mum shares his incredible journey with NF & why he took part in our Shine A Light Marathon to help others like him
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Virtual Medical Meetings
Conferences in 2020 went online meaning the whole nursing team and key members of the head office were able to attend
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Connection Coalition
NTUK joined the Connection Coalition with the aim of working together to build strong relationships & connected communities
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Rare Disease Day 2021
Nerve Tumours UK joined events showcasing Rare Disease Day hosted by the Genetic Alliance on 28 February 2021
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Kate, NF Mummy Community & Support
Kate tells us why she started the NF1 Mummy community group online
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Alex’s story - Support in the Workplace
Alex Hetherington shares how iNForming his work colleagues about his neurofibromatosis created a supportive work environment
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A Colourful 5K Challenge
Read Emma's incredible awareness raising activities for NF in her local community, Liverpool.
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Our NF community share why they are taking on the World NF Day: 2.6 mile Garden Challenge!
Taking part in the World NF Day: 2.6 Garden Challenge - We want to hear from you!
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Nerve Tumours UK takes part in the Genomics Showcase
Find out how you can take part in the Genomics showcase – sign up for free!
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