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Talking about Neurofibromatosis A Guide for Teens

07 August 2019

Talking about Neurofibromatosis A Guide for Teens

A new incredibly informative and useful brochure, aimed at helping teens, provided through the generosity of the Doris and Donald Schnuck Fund for Children in Need and the St. Louis Children’s Hospital Foundation has been released and you can find it by clicking on the button below. 

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Insights into the work of our support specialists from Mel Murrell

Meet one of our Support Specialists Mel Murrell and read about her impressions on her first year in the role

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World At Her Feet

Christina has wrtiten a blog partly about living with NF1 and partly about her travels. Find it here:

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Arooj: The Fashion Blogger with NF

Arooj Aftab, 22, is an influencer, with NF1, who is known for her baggy fashion style

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Nerve Tumours UK wins Movement for Good award

Find out more about the award and why we received it here:

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Dayna’s Story

Despite suffering many set backs as a result of NF, Dayna still maintains all her ambitions in life. Read her story here:

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Join the Butterfly Run

Find out more about our new available event the "Butterfly Run"

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Prudential Ride 2019

Thank you so much to all our Prudential Ride 2019 riders! Find out more, including some fantastic photos, here:

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Expertise in Neurofibromatosis: Within Europe

Find out more about the spread of NF experts across Europe:

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New Gene Therapy at a World-Renowned Research Insitute

Find out more about the new gener therapy that both NTUK and NF2 Biosolutions are strongly supporting

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