Talking about Neurofibromatosis A Guide for Teens
07 August 2019
Talking about Neurofibromatosis A Guide for Teens
A new incredibly informative and useful brochure, aimed at helping teens, provided through the generosity of the Doris and Donald Schnuck Fund for Children in Need and the St. Louis Children’s Hospital Foundation has been released and you can find it by clicking on the button below.
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Today is Giving Tuesday
Call out by Karen Cockburn, Charity Director, to donate and support the NF Community
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Runderpants fun run
Get your Runderpants here! Set up a fun run wearing some special fundraising pants
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Avastin Side Effects
Jo highlights Avastin side effects, from experience of her son Oscar's treatments, plus shared testimonies from others
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Olivia’s NF1 story
Olivia and mam Kelly share their NF1 story, highlighting school achievements and support from NTUK Specialist Nurses
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2023 Awareness Campaign
Nerve Tumours UK have joined forces with RBH to raise awareness for a second successive year.
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Disclosing and explaining visible differences - CAR Workshop
Read more about the workshop, featuring additional guidance from Specialist NF Nurse Rebeca Rennison
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Jo Ward’s Avastin Blog
Jo Ward, CEO of NF2 BioSolutions UK, shares a blog about her son Oscar's Avastin journey
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World Mental Health Day 2023
NTUK (as part of the Neurological Alliance) has signed a joint letter aimed at improving access to mental health services
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CAR Research visible difference experiences during recruitment
Research participants required, find out more and take part
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