Talking about Neurofibromatosis A Guide for Teens
07 August 2019
Talking about Neurofibromatosis A Guide for Teens
A new incredibly informative and useful brochure, aimed at helping teens, provided through the generosity of the Doris and Donald Schnuck Fund for Children in Need and the St. Louis Children’s Hospital Foundation has been released and you can find it by clicking on the button below.
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Oliver’s Blog
Oliver Bromley shares some personal experiences of visible difference, and how education and kindness can reduce stigma
Read MoreEllen’s Story
Read Ellen's story, how she recovered from 'radical surgery' and why she's raising funds for NTUK.
Read MoreCelebrating Trustees Week
It's National Trustee Week: Meet the people who keep NTUK moving.
Read MoreMen’s Health Month
We're making sure that men with NF are prioritising their health, both in and out of the workplace.
Read MoreIrfan’s Story
Irfan discusses his NF journey, how he transformed uncertainty and isolation into community and understanding.
Read MoreKelly’s Story
Find out how Kelly discovered her confidence after overcoming testing years at school and college.
Read MoreAwareness Walks
Raise awareness with an organised walk within your community. We've put together some pointers to help you with planning.
Read MoreMeena’s Awareness Raising Coastal Walk
NTUK trustee Prof. Meena Upadhyaya treks the Welsh coast to raise awareness of NF and rare diseases.
Read MoreBreast Cancer in Neurofibromatosis Type 1
Professor Gareth Evans takes us through a summary of the current research around the links between NF1 and breast cancer
Read More