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Talking about Neurofibromatosis A Guide for Teens

07 August 2019

Talking about Neurofibromatosis A Guide for Teens

A new incredibly informative and useful brochure, aimed at helping teens, provided through the generosity of the Doris and Donald Schnuck Fund for Children in Need and the St. Louis Children’s Hospital Foundation has been released and you can find it by clicking on the button below. 

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Ella’s Blog: The Flu Jab

Ella's updates on the impact of coronavirus on her daily life

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Thank you for taking part in our World NF Day: 2.6 mile Garden Challenge!

Find out what our amazing NF supporters got up to on World NF Day!

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Stewart Lee Member of the Board of Trustees who has NF2 on Lockdown Life

Let's celebrate World NF2 Day, because we live our lives with such a hard condition; let's focus on how amazing we all are!

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Tom GK in Lockdown

NF2 can be a lonely business; but now there are 60-odd million people in Britain who have all learned how precious & fragile

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Emily Owen Member of the Board of Trustees takes over our Social

‘All the World’s a Stage…’ (Shakespeare) Welcome to our World NF2 Day 2020 Theatrical Entertainment

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Face Equality Week 2020

Changing Faces continues to campaign amidst the current crisis - Face Equality Week

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World NF 2 Day May 22nd 2020

See what we're up to for this World Neurofibromatosis Type 2 day

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Statement by Mary Thomas Clinical Neurofibromatosis Nurse UK

A statement on coronavirus by Mary Thomas clinical nurse at Guy's and St Thomas' NHS Foundation Trust

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Second Face Equality International Week

Find out more & how you can take part

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