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Talking about Neurofibromatosis A Guide for Teens

07 August 2019

Talking about Neurofibromatosis A Guide for Teens

A new incredibly informative and useful brochure, aimed at helping teens, provided through the generosity of the Doris and Donald Schnuck Fund for Children in Need and the St. Louis Children’s Hospital Foundation has been released and you can find it by clicking on the button below. 

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Challenge 100 – Everyone’s invited

Take on 100 of anything you can think of and fundraise to support our NF community!

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Ella’s editorial

Have a read of Ella's editorial as she shares her brave journey against NF1 with us!

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Jo’s 160 Mile walk for NTUK!

Read Jo's Story as she prepares to take on a 160 mile epic walking challenge for Nerve Tumours UK.

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A very “Happy Easter” to you all!

A message from Karen, our Charity Director, wishing you all a very Happy Easter!

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Stuart & William’s Story: Turning blue for World NF Month

Check out Stuart & William's creative fundraiser for World Neurofibromatosis Awareness Month

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Coordinated Care of Rare Diseases Study at UCL

Find out the results to the Coordinated Care of Rare Diseases Study at UCL

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Who is exempt from wearing a face mask? UK exemptions rules explained - and how to get a hidden disabilities exemption

Find out the up to date information on face mask rules in your area

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Carers Rights Day. Diane’s Story

Find out more about Diane's life as a carer and how more should be done for unpaid carers in the UK

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NF1 PN Impact on Patients’ and Caregivers’ Lives

If you have NF1 with plexiform neurofibromas or you care for someone with NF1 PN help shape future healthcare support

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