Student Voice Prize 2021
23 September 2021

The Student Voice Prize returns for 2021 on the 6th October! The Student Voice Prize is an annual, international essay competition hosted by Findacure and Medics4RareDiseases.
The competition aims to raise the profile of rare disease within the medical field, particularly with medical students, nurses and scientists who may have never come across rare diseases in their training.
Every year, as part of the competition there is a Patient Group Pairing Scheme. The scheme gives students the chance to be paired with a rare disease patient group to learn first-hand about their condition and patient experience. It involves the student and patient group representative having a conversation over the phone or zoom for up to one hour so that the student can gather better insights into the experience of living with a rare condition. It's a great way for patient group advocates to raise awareness of their rare condition amongst the clinicians of the future, share insights and build connections!
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Johnathan’s story
Johnathon's family are spreading awareness of the importance of attending health checks and advocating for vulnerable people
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Jen’s NF1 story
Jen praises the great support received since her NF1 diagnosis, allowing her to thrive & achieve a 1st class degree.
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Charlotte & Evie’s story
'Sticker Queen' Evie is 4 years old and was diagnosed with NF1 after tests for a 'lazy eye'.
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Luke’s Story
Luke had NF1 since childhood. Now an adult, surgery last year has enabled him to play football and do whatever he wants
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Charlotte’s Story
When Charlotte was 6, she was diagnosed with NF1, along with her brother & dad. Now she is on a mission to raise awareness
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Eden P for healthcare professionals
Healthcare professionals, who provide support to expectant parents with NF1 are invited to take part in the Eden P study
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Nicole’s story
Nicole has NF2, she describes the preparations and the absolute joyful experience of the birth of her son Lewis
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CAR Research - exploring family planning decisions
Research Advisors required to help explore what influences decisions about having children and what support would be helpful
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Corporate Fundraising 2024
Find out some of the different ways your company can support Nerve Tumours UK
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