Student Voice Prize 2021
23 September 2021
The Student Voice Prize returns for 2021 on the 6th October! The Student Voice Prize is an annual, international essay competition hosted by Findacure and Medics4RareDiseases.
The competition aims to raise the profile of rare disease within the medical field, particularly with medical students, nurses and scientists who may have never come across rare diseases in their training.
Every year, as part of the competition there is a Patient Group Pairing Scheme. The scheme gives students the chance to be paired with a rare disease patient group to learn first-hand about their condition and patient experience. It involves the student and patient group representative having a conversation over the phone or zoom for up to one hour so that the student can gather better insights into the experience of living with a rare condition. It's a great way for patient group advocates to raise awareness of their rare condition amongst the clinicians of the future, share insights and build connections!
Filter News
Meet Helen
Helen is the Specialist NF Advisor for Devon and Cornwall and is based at Derriford Hospital in Plymouth.
Read MoreMeet Rebecca
Specialist NF Nurse Rebecca is Lead Nurse, NTUK and is based at the Genetics Institute at the Centre for Life in Newcastle
Read MoreWorld Mental Health Day 2023
NTUK (as part of the Neurological Alliance) has signed a joint letter aimed at improving access to mental health services
Read MoreCAR Research visible difference experiences during recruitment
Research participants required, find out more and take part
Read MoreNF Academy 2023 - Ella’s Blog
Ella, who has NF1, attended the week-long 2023 NF Academy in Portugal, meeting young adults with NF from all over Europe
Read MoreUniversity of Manchester Research
Read about the latest PHD research, involving Nerve Tumours UK, at the University of Manchester
Read MoreNew Research Study for Children and Young People with NF1
Find out more about the study and how you can participate here
Read MoreNeurofibromatosis Type 2 name change
The new name for Neurofibromatosis Type 2 is NF2-related-Schwannomatosis (NF2)
Read MoreJensen’s NF1 story
Stuart describes Jensen's first days post birth, subsequent diagnosis of NF1 plus his & wife Claire's hopes for his future
Read More