Statement by Mary Thomas Clinical Neurofibromatosis Nurse UK
19 May 2020
It has been a very strange time! Catherine and Bridie (our paediatric NF nurses) were redeployed to support one of the paediatric wards at the Evelina Children’s Hospital. I was redeployed to the NHS Nightingale to work with COVID patients needing critical care support
Catherine and Bridie
Paediatric NF Nurses

Mary
Clinical Nurse NF Specialist

Supporting people with Neurofibromatosis during COVID-19 has meant needing to be flexible and adapting to provide a consistent National Complex NF service through telephone and virtual clinics. Although being redeployed at the NHS Nightingale was a very positive and growing experience I am very happy to be back in the NF Centre!
Filter News

Bronte’s Story
Have a read of Bronte's story about how she continues to enjoy living her incredibly adventorous and ambitous life
Read More
Adam Buxton Comedy Night in aid of Nerve Tumours UK
Our charity comedy night was certainly nothing short of a success. Find out exactly what went down here:
Read More
Meet Megan
Megan Crews is a 30 year-old special needs tutor in Salisbury. She recently spoke out in The Sun.
Read More
How does your visible difference affect you?
Researchers would love to understand your experience of how a visible difference affects your daily life
Read More
Gabriella’s Story
"I believe everyone should think the same and be kind to people however they look and whatever condition they have."
Read More
One More Nurse Appeal Press Release
Have a read of our #OneMoreNurse appeal press release here:
Read More
Recent Research from DR Shruti Garg
Find out more about some of the recent research carried out by DR Shruti Garag
Read More
Advisory group of parents needed to help shape future research
Maia Thornton is a PhD student looking for an advisory group of parents who's child has an appearance altering condition
Read More