Statement by Mary Thomas Clinical Neurofibromatosis Nurse UK
19 May 2020
It has been a very strange time! Catherine and Bridie (our paediatric NF nurses) were redeployed to support one of the paediatric wards at the Evelina Children’s Hospital. I was redeployed to the NHS Nightingale to work with COVID patients needing critical care support
Catherine and Bridie
Paediatric NF Nurses

Mary
Clinical Nurse NF Specialist

Supporting people with Neurofibromatosis during COVID-19 has meant needing to be flexible and adapting to provide a consistent National Complex NF service through telephone and virtual clinics. Although being redeployed at the NHS Nightingale was a very positive and growing experience I am very happy to be back in the NF Centre!
Filter News

Live Wrestling in aid of Nerve Tumours UK!
Find out more about the brand new unique funraising event here:
Read More
Talking about Neurofibromatosis A Guide for Teens
A new brochure aimed at helping teens with NF has been released by St Louis hospital. Find it here:
Read More
Family Lives Charity
Find out more about the charity that is dedicated to supporting those in all aspects of family life
Read More
All Aboard the Blatchington Branch Fundraiser for NTUK!
Find out more about the miniature railway that has raised money for NTUK
Read More
Sharon’s Story
Sharon has recently applied to run the London Marathon for NTUK, here she tells us a bit more about her experiences with NF
Read More
Participant Experiences of the 100,000 Genomes Project
Read more about participant's experiences of partaking in the study that sequenced 100,000 genomes from around 85,000 people
Read More
Meet our ASICS London 10k runners
Good luck to all our runners taking part in the British ASICS 10K this Sunday!
Read More
Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
Find out more about the technology being developed and how it can be used to prevent/decline vision loss in NF1 patients
Read More