Statement by Mary Thomas Clinical Neurofibromatosis Nurse UK
19 May 2020
It has been a very strange time! Catherine and Bridie (our paediatric NF nurses) were redeployed to support one of the paediatric wards at the Evelina Children’s Hospital. I was redeployed to the NHS Nightingale to work with COVID patients needing critical care support
Catherine and Bridie
Paediatric NF Nurses
![](/images/common/Catherine__Bridie_Guys_and_St_Thomas_NHS_Foundation_Trust.jpg)
Mary
Clinical Nurse NF Specialist
![](/images/common/Mary_Guys_and_St_Thomas_NHS_Foundation_Trust.jpg)
Supporting people with Neurofibromatosis during COVID-19 has meant needing to be flexible and adapting to provide a consistent National Complex NF service through telephone and virtual clinics. Although being redeployed at the NHS Nightingale was a very positive and growing experience I am very happy to be back in the NF Centre!
Filter News
![](https://nervetumours.org.uk/images/made/images/common/deacons-marinaPage-Preview-800-x-500-px_800_600_s_c1.png)
Deacons Marina’s fun filled fundraiser for NTUK
Find out more about the successful and well received fundraising event here:
Read More![](https://nervetumours.org.uk/images/made/images/common/wrestling2Artboard-1_800_600_s_c1.png)
Live Wrestling in aid of Nerve Tumours UK!
Find out more about the brand new unique funraising event here:
Read More![](https://nervetumours.org.uk/images/made/images/common/brochure-2Artboard-1_800_600_s_c1.png)
Talking about Neurofibromatosis A Guide for Teens
A new brochure aimed at helping teens with NF has been released by St Louis hospital. Find it here:
Read More![](https://nervetumours.org.uk/images/made/images/common/family-livesPage-Preview-800-x-500-px_800_600_s_c1.png)
Family Lives Charity
Find out more about the charity that is dedicated to supporting those in all aspects of family life
Read More![](https://nervetumours.org.uk/images/made/images/common/railwayPage-Preview-800-x-500-px_800_600_s_c1.png)
All Aboard the Blatchington Branch Fundraiser for NTUK!
Find out more about the miniature railway that has raised money for NTUK
Read More![](https://nervetumours.org.uk/images/made/images/common/Sharon-Page-Preview-800-x-500-px_800_600_s_c1.png)
Sharon’s Story
Sharon has recently applied to run the London Marathon for NTUK, here she tells us a bit more about her experiences with NF
Read More![](https://nervetumours.org.uk/images/made/images/common/genomics-engPage-Preview-800-x-500-px_800_600_s_c1.png)
Participant Experiences of the 100,000 Genomes Project
Read more about participant's experiences of partaking in the study that sequenced 100,000 genomes from around 85,000 people
Read More![](https://nervetumours.org.uk/images/made/images/common/British-10-K-newPage-Preview-800-x-500-px_800_600_s_c1.png)
Meet our ASICS London 10k runners
Good luck to all our runners taking part in the British ASICS 10K this Sunday!
Read More