Statement by Mary Thomas Clinical Neurofibromatosis Nurse UK
19 May 2020
It has been a very strange time! Catherine and Bridie (our paediatric NF nurses) were redeployed to support one of the paediatric wards at the Evelina Children’s Hospital. I was redeployed to the NHS Nightingale to work with COVID patients needing critical care support
Catherine and Bridie
Paediatric NF Nurses
![](/images/common/Catherine__Bridie_Guys_and_St_Thomas_NHS_Foundation_Trust.jpg)
Mary
Clinical Nurse NF Specialist
![](/images/common/Mary_Guys_and_St_Thomas_NHS_Foundation_Trust.jpg)
Supporting people with Neurofibromatosis during COVID-19 has meant needing to be flexible and adapting to provide a consistent National Complex NF service through telephone and virtual clinics. Although being redeployed at the NHS Nightingale was a very positive and growing experience I am very happy to be back in the NF Centre!
Filter News
![](https://nervetumours.org.uk/images/made/images/common/IMG_0162_cropped_370x280_800_600_s_c1.jpg)
Christmas Message from the Nerve Tumours UK team
Thank you from all of us at Nerve Tumours UK
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_3668_370x280_800_600_s_c1.jpg)
Specialist NF Nurses/ Advisors’ Conference 2023
Find out more about this year's meeting with our Nurses
Read More![](https://nervetumours.org.uk/images/made/images/common/PXL_20231124_140752643_370x280_800_600_s_c1.jpg)
National NF2 Meeting 2023
A report from the 2023 England NF2 meeting, with healthcare professionals & charities working together for the NF2 community
Read More![](https://nervetumours.org.uk/images/made/images/common/Side_effects_of_Avastin_2_370x280_800_600_s_c1.jpg)
Avastin Side Effects
Jo has collated shared personal experiences, with medical and general advice on Bevacizumab (brand name Avastin)
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_8394_correct_escalator_370x280_800_600_s_c1.jpg)
David’s Story - Community and Acceptance
David contacted NTUK after seeing our advertising campaign at King's Cross Station in London last year. Read his story:
Read More![](https://nervetumours.org.uk/images/made/images/common/Clare_Dhillon_370x280_800_600_s_c1.jpg)
Meet Clare
Clare is a Specialist NF Nurse based at Ryegate Children's Centre at Sheffield Hospital, covering the South Yorkshire region
Read More![](https://nervetumours.org.uk/images/made/images/common/Tracey_Kenyon_370x280_800_600_s_c1.jpg)
Tracey, Specialist NF Nurse
Meet Tracey. She is based in Southampton & covers Hampshire, Dorset, West Sussex (part), Wiltshire and the Isle of Wight.
Read More![](https://nervetumours.org.uk/images/made/images/common/carolyn-smyth_370x280_800_600_s_c1.png)
Meet Carolyn
Specialist NF Advisor Carolyn is based in Birmingham and covers the West Midlands, Shropshire and Staffordshire.
Read More![](https://nervetumours.org.uk/images/made/images/common/NF_Community_collage_370x280_800_600_s_c1.jpg)
Today is Giving Tuesday
Call out by Karen Cockburn, Charity Director, to donate and support the NF Community
Read More