Statement by Mary Thomas Clinical Neurofibromatosis Nurse UK
19 May 2020
It has been a very strange time! Catherine and Bridie (our paediatric NF nurses) were redeployed to support one of the paediatric wards at the Evelina Children’s Hospital. I was redeployed to the NHS Nightingale to work with COVID patients needing critical care support
Catherine and Bridie
Paediatric NF Nurses
![](/images/common/Catherine__Bridie_Guys_and_St_Thomas_NHS_Foundation_Trust.jpg)
Mary
Clinical Nurse NF Specialist
![](/images/common/Mary_Guys_and_St_Thomas_NHS_Foundation_Trust.jpg)
Supporting people with Neurofibromatosis during COVID-19 has meant needing to be flexible and adapting to provide a consistent National Complex NF service through telephone and virtual clinics. Although being redeployed at the NHS Nightingale was a very positive and growing experience I am very happy to be back in the NF Centre!
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Disorder_channel_promotion_370x280_800_600_s_c1.jpg)
Shine A Light on Neurofibromatosis now streaming on The Disorder Channel
Find out how we are bringing NF Awareness to people's homes
Read More![](https://nervetumours.org.uk/images/made/images/common/Finalist_artwork370x2801_800_600_s_c1.jpg)
Best Film Nomination “Shine A Light on Neurofibromatosis” PM Society Digital Awards
Join the awards ceremony virtually this Wednesday 16th September
Read More![](https://nervetumours.org.uk/images/made/images/common/ACT_It_Out_logo__taglinepreviewq_800_600_s_c1.png)
Act it Out Prototype App Trial
If you are experiencing difficulties related to NF & 'Visible Difference' - find out how you can take part
Read More![](https://nervetumours.org.uk/images/made/images/common/London_Marathon_Website_Header_370x280_800_600_s_c1.jpg)
The Virgin Money London Marathon Goes Virtual
Sign up for your Virtual London Marathon experience Sunday 04.10.2020
Read More![](https://nervetumours.org.uk/images/made/images/common/FH_portrait_square_Jan_2018370x280_800_600_s_c1.jpg)
Accessible Online Meetings for those with hearing impairment
Frances Harris talks to us about the difficulties faced by those with NF2 & hearing loss communicating online and solutions
Read More![](https://nervetumours.org.uk/images/made/images/common/Mr._Cohen_London_to_Paris_take_offpreview_800_600_s_c1.png)
Pipers to Paris - Ride for Neurofibromatosis
Read all about Mr. Cohen's epic 230 mile bike ride to help support those affected with Neurofibromatosis in the UK
Read More![](https://nervetumours.org.uk/images/made/images/common/AI__employment_Article_image_3-preview_800_600_s_c1.jpg)
Artificial Intelligence & Disability Recruitment
Creating fair processes for people with disabilities by the HR teams that are using artificial intelligence/face recognition
Read More![](https://nervetumours.org.uk/images/made/images/common/Mikes_NF1_Story_370x280_800_600_s_c1.png)
It’s a Kind of Magic
Mike Brennan has had to deal with the stigma as well as the symptoms of NF1, which he has battled since he was a young child.
Read More