Specialist Neurofibromatosis Nurse - Wales
29 July 2020

THIS POST IS FIXED TERM FOR 36 MONTHS DUE TO FUNDING.
Specialist Neurofibromatosis Nurse – Wales
AFC Band 7
Salary Scale: £37,570 to £43,772 per annum pro rata
Hours: Part Time 15 hours per week
Due to additional funding Nerve Tumours UK have an exciting opportunity for a part time Specialist Neurofibromatosis Nurse in Wales. We are looking for a caring specialist nurse, ideally with experience of Neurofibromatosis 1 and/or 2, to work with individuals affected by these conditions in Wales. The role is focused on providing support, information and advice for individuals and families with (or at risk of) neurofibromatosis. This will include appointments with children and adults both in the community and in specialist multi-disciplinary clinics. The post holder will work closely with the consultant clinical geneticists specialising in these conditions.
The post will be based at University Hospital of Wales, but appointments will take place in a combination of clinic venues, schools and patients’ homes and flexibility to travel to these will be a vital part of the role.
The ideal candidate would have experience working with individuals with Neurofibromatosis, knowledge of the genetic basis of the conditions and experience of working with families. Counselling training and/or experience would be an advantage.
Access to a car insured for business use and a full driving licence are essential as travel is an important part of the role. The post is currently for 15 hours per week but there may be possibility for additional hours in future.
The ability to speak Welsh is desirable for this post; Welsh and/or English speakers are equally welcome to apply.
Closing Date: 6th August 2020
The Charity: Nerve Tumours UK (the trading name of The Neurofibromatosis Association, Charity no. 1078790/SC045051) works to improve the lives of those affected by Neurofibromatosis, one of the world’s most common neuro - genetic conditions. The charity, which is the authoritative voice of Neurofibromatosis in the UK, funds a team of Specialist Advisors (medical professionals) and a helpline to support children, adults and their families.
Applications from job seekers who require Tier 2 sponsorship to work in the UK are welcome and will be considered alongside all other applications. However, non-EEA candidates may not be appointed to a post if a suitably qualified, experienced and skilled EU/EEA candidate is available to take up the post as the employing body is unlikely, in these circumstances, to satisfy the resident labour market test. UK Visas and Immigration (UKVI) requires employers to complete this test to show that no suitably qualified EEA or EU worker can fill the post. For further information please visit the UKVI website.
We are committed to promoting inclusion, where every staff member has a sense of belonging. We welcome applications from everyone and actively seek a diverse range of applicants. We value our differences and fully advocate, cultivate and support an inclusive working environment where staff treat one another with dignity and respect. We aim to create an equitable working environment where every individual can fulfil their potential no matter their disability, sex, gender identity, race, sexual orientation, age, religion or belief, pregnancy and maternity or marriage and civil partnership status.
Applicants are invited to apply in Welsh, any application submitted in Welsh will not be treated less favourably than an application made in English.
Please check your email account regularly. Successful applicants will receive all recruitment related correspondence via the email account registered on the application form.
Filter News

Nicola’s NF2 Journey
Nicola creates her own YouTube videos to help promote NF2 awareness. Find out more about her NF2 journey here:
Read More
Making the Future of Work inclusive of persons with disability
Check out James' recent presentation at a conference in Geneva highlighting issues of "face equality" in the workplace
Read More
The Royal Society - A Quest for the perfect Human…? A debate on the implications of human genome editing
Find out more about the debate recently undertaken at The Royal Society here:
Read More
Appearance Matters: Prof Diana Harcourt and Maia Thornton
Find out both Diana's and Maia's views on their work and the importance of their work for people with NF:
Read More
Jane Frances
Here Jane Frances tells us how findings from psychological research can help parents and teachers of children with NF
Read More
Sarah’s Story
Sarah has NF1 and works full time for the NHS check out her intriguing story here
Read More
Laura’s Story
Read about Laura's experience of undergoing surgery to remove a tumour from her spine here:
Read More
Visible Difference Equality Law Research: summary of findings
Find out more about the results here:
Read More
The Galloway Family and their “amazing” four year old Ruby
Have a read about the incredibly brave young Ruby Galloway (NF1) and check out their previous and future fundraiers.
Read More