Helpline 07939 046 030

Shine A Light on Neurofibromatosis 2020

05 May 2020

The world may be struck by the Covid 19 crisis, but this month we are yet again shining a light on Neurofibromatosis in support of those affected by nerve tumours.  

May 17 is World NF Awareness Day. Iconic buildings and landmarks around the world will show their solidarity with those affected by supporting the ‘Shine a Light on Neurofibromatosis’ campaign by lighting up in blue on the day. In 2019 more than 326 buildings and landmarks took part across the globe. Many of these were in Europe, and every part of the UK was represented. The worldwide total increased by more than 120 participations to that of the previous year, which shows how the campaign’s success and reach is growing.  Please have a look at some of last years’ highlights.

This year we are saying thank you for all your support in our community and have asked once more as many buildings as possible to take part across the UK. Some of them that have already agreed to do so might not be able to on the day itself due to current restrictions, however you can support us on May the 17th by lighting up a “Shine A Light”  candle. We would be delighted to share your photos of these on the day. Please send to info@nervetumours.org.uk.

Special “Shine A Light” candles are available from our shop. Light these to raise awareness and say thank you to our Specialist Neurofibromatosis Nurses. Of the many extra duties, the Specialists increased the helpline hours over recent weeks responding to your demand in this period of uncertainty. Blue is not only the colour of NF but also the colour of the NHS.

Carolyn Smyth Lead Specialist NF Nurse UK

“The health of our patients and families with NF remains our focus at this time. Please stay at home, protect the NHS, save lives. Stay safe and take care of yourselves.”

As a community we need to stay together and support each other, whilst spreading our message specifically on World NF Day 2020. 

Stay tuned on our social media channels and get involved in our activities and raise awareness by taking part.

Filter News

Filter by Date
Category
Reset

Pipers Rocks

Read about Pipers School amazing Rocktastic fundraising efforts for Nerve Tumours UK

Read More

Josep’s Story

Read Josep's story about how he is coming to terms with his NF diagnosis

Read More

Your NF questions answered directly from the Top!!

Get answers to your NF questions directly from our medical advisors

Read More

Megan’s Story

Read about Megan's NF1 story and how she focuses on the positives in life!

Read More

Amit Ghose’s Story

Read more about Amit's journey of acceptance of his NF1

Read More

Statement by Juliette Buttimore Clinical Lead Nurse– NF2 Midlands/East

A statement on coronavirus by Juliette Buttimore Lead Specialist NF2 Nurse at Addenbrooke's Hospital in Cambridge

Read More

Thank you for taking part in our World NF Day: 2.6 mile Garden Challenge!

Find out what our amazing NF supporters got up to on World NF Day!

Read More

Stewart Lee Member of the Board of Trustees who has NF2 on Lockdown Life

Let's celebrate World NF2 Day, because we live our lives with such a hard condition; let's focus on how amazing we all are!

Read More

Tom GK in Lockdown

NF2 can be a lonely business; but now there are 60-odd million people in Britain who have all learned how precious & fragile

Read More