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Shine A Light on Neurofibromatosis

We are working with organisations worldwide to light up landmarks and buildings blue for May 17th - Neurofibromatosis Awareness Day!

Shine A Light on Neurofibromatosis returns for 2019

In association with our friends “across the pond” in the United States, the Children’s Tumour Foundation, we are excited to announce the return of the “Shine A Light on NF” campaign to raise awareness for Neurofibromatosis by lighting up landmarks and buildings on World Neurofibromatosis Awareness Day - May 17th.

Neurofibromatosis, the umbrella term for a group of genetic conditions (NF1, NF2, and Schwannomatosis) literally translates to mean “Nerve Tumour Increase”. We want to raise as much awareness as we can to help the condition receive the support and funding it deserves.

World Neurofibromatosis Awareness Day falls on Friday 17th May this year! 

We are asking iconic landmarks, buildings, homes, to light up blue for Nerve Tumour patients worldwide. We will providing Social Media Toolkits to all willing organisations to showcase why they are lighting up, along with case studies, donation links and many other ways to support patients with Neurofibromatosis on the upcoming awareness day.

A special relationship

This will mark the fourth year that Nerve Tumours UK have joined the campaign, reinforcing our continued partnership with Children's Tumor Foundation in the United States. We are very pleased to support this excellent, global initiative.

Check out CTF's campaign page

"We are so happy to have had over 205 landmarks light up globally last year, that we want to do even better this year! 97 of those (by our records) were in the UK and Europe - let's keep that tally going! Come on team! "

– Jay Law, Awareness Officer at Nerve Tumours UK

Take Part!

Shine A Light on Neurofibromatosis

World Neurofibromatosis Day

Friday May 17th 2019

Press Release PDF

Right Now We Have 78 Places confirmed to Light up on World NF Day May 17th

(Subject to change)

These Include:

Media City, Salford UK
The SSE Arena, Wembley
First Direct Arena, Leeds
Gateshead Millenium Bridge, Newcastle
Emirates Arena ,Glasgow
Guilford Spectrum, Surrey
National Theatre, London
Blackpool Tower, Blackpool
Tyne Bridge, Newcastle

The Kelpies, Falkirk 
O2 Academy Leeds
Edge Hill University, Lancashire
 

 

For a complete list of buildings that have agreed to light up please click on the document below


 

 

We need your help

Support Our Campaign

Shine A Light on Neurofibromatosis: Raise awareness for Neurofibromatosis by lighting up landmarks and buildings on World Neurofibromatosis Awareness Day - May 17th. 26,500 people have nerve tumours in the UK. Help us raise £ 26,500 - a donation for each person that has Neurofibromatosis in the UK. We are very grateful for any support on the following linkhttps://www.justgiving.com/campaign/shine-a-light-on-nf

 

Copy the above paragraph including linkage and post this to your social media, send it to your MP, local press or any one you can think of that will support our campaign.