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Shine A Light on Neurofibromatosis

We are working with organisations worldwide to light up landmarks and buildings in blue for May 17 - Neurofibromatosis Awareness Day!

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Shine A Light on Neurofibromatosis

The world remains affected by the Covid-19 pandemic but we are, none the less, continuing to “Shine a Light on Neurofibromatosis” in support of those affected by NF Type 1, Type 2 and Schwannomatosis. This year, more than ever we need to stay strong as a community and make our voices heard. We must make sure that whilst the world is looking for solutions and adapting to change, the Neurofibromatoses community is not forgotten. We are asking as many buildings as possible to take part in the campaign, and light up, all across the UK.

Continue to follow Governmental Guidance and Stay Safe!

In association with our friends "across the pond" in the United States, the Children’s Tumour Foundation, we are excited to announce the return of the “Shine A Light on NF” campaign to raise awareness for Neurofibromatosis by lighting up landmarks and buildings on World Neurofibromatosis Awareness Day - May 17th.

Neurofibromatosis, the umbrella term for a group of genetic conditions (NF1, NF2, and Schwannomatosis) literally translates to mean “Nerve Tumour Increase”. We want to raise as much awareness as we can to help those with the condition receive the support and funding it deserves.

World Neurofibromatosis Awareness Day falls on Tuesday 17th May in 2022!

We are asking iconic landmarks, buildings, homes, to light up blue for Neurofibromatosis patients worldwide. We are providing Social Media Toolkits to all willing organisations to showcase why they are lighting up, along with case studies, donation links and many other ways to support patients with NF on the upcoming awareness day.

A special relationship

This will mark the sixth year that Nerve Tumours UK have joined the campaign, reinforcing our continued partnership with Children's Tumor Foundation in the United States. We are very pleased to be part of this excellent, global initiative.

Check out CTF's campaign page

"We are so happy to have been joined by 172 landmarks lighting up globally, last year, across 13 countries, and we want to do even better this year! 83 of those were in the UK alone, so let's keep that tally going! Join in and support our NF Community and make our voices heard!"

– Jay Law, Events and Campaigns Coordinator at Nerve Tumours UK

Take Part! Join the NF Community

Shine A Light on Neurofibromatosis

World Neurofibromatosis Day

Tuesday, 17 May 2022

Press Release PDF

Right now we have over 90 buildings confirmed to light up on World NF Awareness Day, Monday 17 May!

(Subject to change due to the current pandemic and possible closure of buildings due to governmental restrictions)

These include:

Tower 42 (formerly Natwest Tower), London
The SSE Arena, Wembley, London
Salesforce Tower, London
Hastings Pier, Hastings
Spinnaker Tower, Portsmouth
Clock Tower, Herne Bay
Blackpool Tower, Blackpool
Everyman Playhouse Theatre, Liverpool
Glasgow College Riverside Campus, Glasgow
Glasgow College City Campus, Glasgow
The Swing Bridge, Isle of Man

Download the full list of confirmed buildings lighting up for World NF Awareness Day below

Confirmed Light ups 2021 PDF

We need your help

Support Our Campaign

Shine A Light on Neurofibromatosis: Raise awareness for Neurofibromatosis by lighting up landmarks and buildings on World Neurofibromatosis Awareness Day - May 17.

26,500 people have Neurofibromatosis in the UK. Make sure their voice is not forgotten in a changing world. Support us now more than ever. Help us raise £26,500 - a £1 donation for each person that has Neurofibromatosis in the UK.

We are very grateful for any support, and donations can be made on the following link.

Copy the above paragraph including the linkage and post this to your social media, send it to your MP, local press or anyone you can think of that will support our campaign.