Shine A Light 2022 Success!
18 May 2022
17th May is World Neurofibromatosis Awareness Day
Yesterday, on Tuesday 17th May 2022, we had over 200 buildings and landmarks across the UK & the Republic of Ireland, lighting up in blue, the colour of NF, to Shine A Light on Neurofibromatosis and celebrate 40 years of Nerve Tumours UK.
The global Shine A Light campaign is now in its 8th year and this was the brightest one yet, in our joint efforts to raise awareness. Around the world, hundreds of buildings lit up. Countries taking part included:
- UK & Republic of Ireland - 204
- US - 85
- Canada - 21
- Australia - 113
- Italy - 23
- Portugal - 1
- Singapore - 6
- Spain - 39
- Switzerland 1
A big thank you to every building and landmark and every person who helped us Shine A Light!
ACC Liverpool

Tower 42, London

The Palace Armagh; Armagh Gaol; Old Town Hall, Banbridge; Craigavon Civic & Conference Centre

The Kelpies, Falkirk

County Hall, Carmarthen

British Airways i360 pod Brighton

Belfast City Hall

Centre:MK, Milton Keynes

Edinburgh Castle

Burnavon Theatre, Cookstown

Whittle Arch, Coventry

Causeway Council

Civic Headquarters, Lisburn

Falkirk Wheel

Guildhall, Portsmouth

Killinchy Non Subscribing Presbyterian Church, Balloo, Newtownards

Leeds Hospital

Ranfurly House, Dungannon

Rochester Cathedral

Spinnaker Tower, Portsmouth

Bridewell, Magherafelt

40 Years - lit up on Tower 42, London

Clacton Pier

Barrow Town Hall

Ely Cathedral

Eton College Chapel

Eton College: Theatre

Mareel Cinema & Music Venue, Shetland

Mareel Cinema & Music Venue, Shetland

Grand Theatre, Swansea

City of Derry Airport

Yvonne Arnaud Theatre, Guildford

Thanks to our NF Community for Shining a Light On NF by raising awareness, taking on our Shine A Light Challenges and helping support the 26,500 with Neurofibromatosis in the UK
Filter News

Living Different: Patricks’s NF2 Blog
Read his attempt to build people's understanding of the challenges with disabilities
Read More
Beth’s Novasper Online Dog Show 2021
Find out how you can get involved in this year's fluffiest and loveable online dog show!
Read More
Christian’s Story
Christian's Mum, Ellie, share's their journey with NF & why they decided to get involved with this year's Garden Challenge!
Read More
Tate’s Shine A Light Marathon
Tate's mum shares his incredible journey with NF & why he took part in our Shine A Light Marathon to help others like him
Read More
Virtual Medical Meetings
Conferences in 2020 went online meaning the whole nursing team and key members of the head office were able to attend
Read More
Connection Coalition
NTUK joined the Connection Coalition with the aim of working together to build strong relationships & connected communities
Read More
Rare Disease Day 2021
Nerve Tumours UK joined events showcasing Rare Disease Day hosted by the Genetic Alliance on 28 February 2021
Read More
Kate, NF Mummy Community & Support
Kate tells us why she started the NF1 Mummy community group online
Read More
Alex’s story - Support in the Workplace
Alex Hetherington shares how iNForming his work colleagues about his neurofibromatosis created a supportive work environment
Read More