Shine A Light 2022 Success!
18 May 2022
17th May is World Neurofibromatosis Awareness Day
Yesterday, on Tuesday 17th May 2022, we had over 200 buildings and landmarks across the UK & the Republic of Ireland, lighting up in blue, the colour of NF, to Shine A Light on Neurofibromatosis and celebrate 40 years of Nerve Tumours UK.
The global Shine A Light campaign is now in its 8th year and this was the brightest one yet, in our joint efforts to raise awareness. Around the world, hundreds of buildings lit up. Countries taking part included:
- UK & Republic of Ireland - 204
- US - 85
- Canada - 21
- Australia - 113
- Italy - 23
- Portugal - 1
- Singapore - 6
- Spain - 39
- Switzerland 1
A big thank you to every building and landmark and every person who helped us Shine A Light!
ACC Liverpool
Tower 42, London
The Palace Armagh; Armagh Gaol; Old Town Hall, Banbridge; Craigavon Civic & Conference Centre
The Kelpies, Falkirk
County Hall, Carmarthen
British Airways i360 pod Brighton
Belfast City Hall
Centre:MK, Milton Keynes
Edinburgh Castle
Burnavon Theatre, Cookstown
Whittle Arch, Coventry
Causeway Council
Civic Headquarters, Lisburn
Falkirk Wheel
Guildhall, Portsmouth
Killinchy Non Subscribing Presbyterian Church, Balloo, Newtownards
Leeds Hospital
Ranfurly House, Dungannon
Rochester Cathedral
Spinnaker Tower, Portsmouth
Bridewell, Magherafelt
40 Years - lit up on Tower 42, London
Clacton Pier
Barrow Town Hall
Ely Cathedral
Eton College Chapel
Eton College: Theatre
Mareel Cinema & Music Venue, Shetland
Mareel Cinema & Music Venue, Shetland
Grand Theatre, Swansea
City of Derry Airport
Yvonne Arnaud Theatre, Guildford
Thanks to our NF Community for Shining a Light On NF by raising awareness, taking on our Shine A Light Challenges and helping support the 26,500 with Neurofibromatosis in the UK
Filter News
A man on a mission: Onno Faber and his NF2 journey
Onno Faber - since NF2 diagnosis aged 33, Onno is a man on a mission. Article courtesy of NEO.LIFE
Read More
Kate’s NF1 Story & DanceAthon
Kate describes her son's NF1 journey and how NTUK supported them
Read More
Strictly Come Running: London Marathon Class of 2021
Congratulations to our class of 2021 London Marathon runners
Read More
Nerve Tumours UK Specialist Neurofibromatosis Nurses attend the 2021 NHS England NF2 meeting
Read more about the England NF2 meeting - working together to improve the experience of NF2 patients
Read More
Douglas Thomson’s NF1 Story
Douglas describes life with NF1 and how losing his leg was one of the best things to happen to him
Read More
Tricia’s Wingwalk and Birthday Fundraiser for Sarah and Keith
Tricia's fundraising wingwalk in memory of her daughter Sarah who had NF1, and to remember her father Keith
Read More
Student Voice Prize 2021
The 2021 Student Voice Prize opens on 6th October! #DareToThinkRare for the 8th annual essay competition!
Read More
Centre for Appearance Research - Parent Support Materials Study
The Centre for Appearance Research is doing a study on parent support materials - can you help?
Read More