Shine A Light 2022 Success!
18 May 2022
17th May is World Neurofibromatosis Awareness Day
Yesterday, on Tuesday 17th May 2022, we had over 200 buildings and landmarks across the UK & the Republic of Ireland, lighting up in blue, the colour of NF, to Shine A Light on Neurofibromatosis and celebrate 40 years of Nerve Tumours UK.
The global Shine A Light campaign is now in its 8th year and this was the brightest one yet, in our joint efforts to raise awareness. Around the world, hundreds of buildings lit up. Countries taking part included:
- UK & Republic of Ireland - 204
- US - 85
- Canada - 21
- Australia - 113
- Italy - 23
- Portugal - 1
- Singapore - 6
- Spain - 39
- Switzerland 1
A big thank you to every building and landmark and every person who helped us Shine A Light!
ACC Liverpool
Tower 42, London
The Palace Armagh; Armagh Gaol; Old Town Hall, Banbridge; Craigavon Civic & Conference Centre
The Kelpies, Falkirk
County Hall, Carmarthen
British Airways i360 pod Brighton
Belfast City Hall
Centre:MK, Milton Keynes
Edinburgh Castle
Burnavon Theatre, Cookstown
Whittle Arch, Coventry
Causeway Council
Civic Headquarters, Lisburn
Falkirk Wheel
Guildhall, Portsmouth
Killinchy Non Subscribing Presbyterian Church, Balloo, Newtownards
Leeds Hospital
Ranfurly House, Dungannon
Rochester Cathedral
Spinnaker Tower, Portsmouth
Bridewell, Magherafelt
40 Years - lit up on Tower 42, London
Clacton Pier
Barrow Town Hall
Ely Cathedral
Eton College Chapel
Eton College: Theatre
Mareel Cinema & Music Venue, Shetland
Mareel Cinema & Music Venue, Shetland
Grand Theatre, Swansea
City of Derry Airport
Yvonne Arnaud Theatre, Guildford
Thanks to our NF Community for Shining a Light On NF by raising awareness, taking on our Shine A Light Challenges and helping support the 26,500 with Neurofibromatosis in the UK
Filter News
Meet Siobhan, our new Specialist Advisor for Northern Ireland
Meet Siobhan from Northern Ireland, our newest Specialist Advisor
Read More
Poppy’s NF1 story
Poppy describes growing up with NF1 and fundraising for future research & treatment
Read More
Meeting Alpha FX
NTUK Head Office visited Alpha FX to give a presentation on our work & how their support & donations help the NF Community
Read More
Nerve Tumours UK joins the Neurological Alliance
A coalition of over 70 organisations working together to transform quality of life for people with neurological conditions.
Read More
Nerve Tumours UK Conference 2021
The first meeting since 2019 with our Specialist NF Advisors & Nurses, Head Office & Members of the Board of Trustees
Read More
Tricia’s Wingwalk fundraiser
Tricia describes her wingwalk experience in celebration of her 75th birthday and in memory of her daughter Sarah, who had NF1
Read More
Stuart’s Schwannoma Story Part One
Stuart describes how certain symptoms led to a Schwannoma discovery
Read More
Joy’s NF1 story
Joy describes living with NF1; her son's diagnosis and support at school; fundraising and shining a light on NF
Read More
A man on a mission: Onno Faber and his NF2 journey
Onno Faber - since NF2 diagnosis aged 33, Onno is a man on a mission. Article courtesy of NEO.LIFE
Read More