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Shine A Light 2022 Success!

18 May 2022

17th May is World Neurofibromatosis Awareness Day

Yesterday, on Tuesday 17th May 2022, we had over 200 buildings and landmarks across the UK & the Republic of Ireland, lighting up in blue, the colour of NF, to Shine A Light on Neurofibromatosis and celebrate 40 years of Nerve Tumours UK.

The global Shine A Light campaign is now in its 8th year and this was the brightest one yet, in our joint efforts to raise awareness. Around the world, hundreds of buildings lit up. Countries taking part included:

  • UK & Republic of Ireland - 204
  • US - 85
  • Canada - 21
  • Australia - 113
  • Italy - 23
  • Portugal - 1
  • Singapore - 6
  • Spain - 39
  • Switzerland 1

A big thank you to every building and landmark and every person who helped us Shine A Light! 

ACC Liverpool

Tower 42, London

The Palace Armagh; Armagh Gaol; Old Town Hall, Banbridge; Craigavon Civic & Conference Centre

The Kelpies, Falkirk

County Hall, Carmarthen

British Airways i360 pod Brighton

Belfast City Hall

Centre:MK, Milton Keynes

Edinburgh Castle

Burnavon Theatre, Cookstown

Whittle Arch, Coventry

Causeway Council

Civic Headquarters, Lisburn

Falkirk Wheel

Guildhall, Portsmouth

Killinchy Non Subscribing Presbyterian Church, Balloo, Newtownards

Leeds Hospital

Ranfurly House, Dungannon

Rochester Cathedral

Spinnaker Tower, Portsmouth

Bridewell, Magherafelt

40 Years - lit up on Tower 42, London

Clacton Pier

Barrow Town Hall

Ely Cathedral

Eton College Chapel

Eton College: Theatre

Mareel Cinema & Music Venue, Shetland

Mareel Cinema & Music Venue, Shetland

Grand Theatre, Swansea

City of Derry Airport

Yvonne Arnaud Theatre, Guildford

Thanks to our NF Community for Shining a Light On NF by raising awareness, taking on our Shine A Light Challenges and helping support the 26,500 with Neurofibromatosis in the UK

Get Involved & help Shine A Light in 2022

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Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Masterclasses in NF: The Patients’ Perspective: A Masterclass on NF Care Held by NF Patients

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Masterclasses in NF: Management Of Plexiform Neurofibromatosis in NF1- Rianne Oosterbrink, Justus L Groen, Karine Lascelles

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Masterclasses in NF: Constitutional Mismatch Repair Deficiency Syndrome as Differential Diagnosis to NF1/Legius Syndrome - Prof. Dr. Katharina Wimmer

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Masterclasses in NF: Rare NF1-Associated Tumors in Adults - Eric Legius & Prof. Ellen Denayer

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Masterclasses in NF: NF1 Dermatological Manifestations - Pierre Wolkenstein, Laura Fertitta & Sirkku Peltonen

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Masterclasses in NF: Breast Cancer in NF1 - Gareth Evans

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Masterclasses in NF: Distinguishing Non-NF2-Related from NF2-Related Schwannomatosis - Clinical and Genetic Approaches - Said Farschtschi

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Masterclasses in NF: NF1 Malignant Peripheral Nerve Sheath Tumours - Rosalie Ferner and Viktor-Felix Mautner

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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