Shine a Light 2020 Success!
18 May 2020
May 17 is World NF Awareness Day. The world may be struck by the Covid 19 crisis, but yesterday we had 83 iconic buildings and landmarks across the UK yet again shining a light on Neurofibromatosis in support of those affected by nerve tumours. This year we have asked the buildings to send us photos directly as you could not go out amidst current restrictions yourself.
Additionally we are very grateful for your photos of your homes and gardens lighting up in blue on World NF day raising awareness for the 26,500 affected in the UK alone. Globally 170 buildings lit up on the day, down from over 300 from last year, but the UK counted for nearly half of the total! We all stand together across borders to raise awareness for Neurofibromatosis.
All buildings/landmarks that helped "Shine A Light On Neurofibromatosis" this year
We would like to give a massive thank you to every building and landmark on the list above that helped make this year's Shine A Light such a success.
BFI Imax
![](/images/common/BFI_2_-1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
National Theatre
![](/images/common/National_Theatre_-_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Penshaw Monument
![](/images/common/Penshaw_Monument_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Beacon of Light
![](/images/common/Beacon_of_Light-1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Carolyn Garden
![](/images/common/Carolyn_Garden-1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Enniskillen Castle
![](/images/common/Enniskillen_Castle_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
O2 Guidllhall
![](/images/common/O2_Guildhall__Southampton_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Chloe Garden
![](/images/common/Chloe_-_Student_Nurse_Chronicles_-_Garden_Light_up.jpg)
Worcester University Arena
![](/images/common/Worcester_University_Arena_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Herne Bay Clock Tower
![](/images/common/Herne_Bay_Clocktower_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Rosalie Wimbledon
![](/images/common/Rosalie_-1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Friary Centre
![](/images/common/Friary_Centre_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Ursula
![](/images/common/Ursula_Quigley_-_Shine_A_Light_Candle_World_Awareness_Day.jpg)
Salesforce Tower
![](/images/common/Salesforce_Tower_at_Night_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Steve Prescott Bridge
![](/images/common/Steve_Prescott_Bridge_1024x768_(Shine_A_Light_-_World_NF_Day_2020).jpg)
Jane
![](/images/common/Jane_from_Glasgow_1024x768.jpg)
Filter News
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Mary Thomas wins Specialist Nurse of the Year 2019!
Have a read about the Guy's and St Thomas' Celebration of International Nurses Day here
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Luke and his NF Ninjas
Have a read of Luke's story of growing up with NF and how he plans to bring his chidren up proud of their NF as well.
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Stannington Community Association’s Easter Fête
Stannington Community Association's Easter Fête was a success! Read about this years superb event here:
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London Marathon 2019: 26 hard miles for 26,500 people affected
Thank you so much to all our incredible Marathon runners for going the extra mile (or 26)!
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Take a look at our new YouTube Channel
Take a look at our new YouTube channel and how to subscribe here
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Meet Pearl
Pearl Kelly is 22, and has multiple complex problems caused by her NF1. Here she explains her outlook on life
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Meet Joanna
Joanna is a lecturer in Mitochondrial Genetics at Newcastle University, she recently ran the London Marathon. Meet her here
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New Research Into Appearance Altering Conditions
Maia Thornton PhD is looking for both parents and professionals who care for someone with an appearence altering condition
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Adam’s Story
Adam has NF1 yet is still one of the most active and athletic people in the UK. Read about his fascinating story here:
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