Helpline 07939 046 030

Researching NF1

10 October 2019

Researching NF1

Rory Deasy has conducted research into the treatment of children with NF1. Here he talks about his research journey.

I got into the research as part of my undergraduate degree in medicine. I did a dissertation with Professor Walker's team looking into the use of chemotherapy/radiotherapy/observation as a line of treatment in paediatric patients with NF1 that had optic pathway gliomas.

Professor Walker is one of the UK’s leading experts in children’s brain tumours, and is co-director of the Children’s Brain Tumour Research Centre at the University of Nottingham.

In my research, MRI images and visual acuity as well as demographics of the patient were sent out to a panel of experts to obtain a consensus decision on best line of treatment. 

The research has acted as a foundation that has been built on to assist with treatment decisions within the SIOPE community.

I recently have been back to visit the Nottingham team at Queen's Medical Centre and they are continuing their research into the treatment of children with NF1 and NF2.

Optic pathway glioma (OPG)  are tumours that arise from the glial cells in the central nervous system. They form anywhere on the optic pathway but are commonest in the optic nerves in NF1. Most tumours are indolent and do not need treatment but some cause decreased vision in childhood and require chemotherapy.

Filter News

Filter by Date
Category
Reset

NTUK Dolphins at the Swim Serpentine 2019

Find out more about the incredible day for all involved at Hyde Park here:

Read More

Rotary’s Summer Evening Jazz Concert in aid of NTUK

Find out more about the amazing Jazz Concert that was hosted in aid of NTUK here:

Read More

K-Star Wrestling in aid of NTUK

Find out more about the successful wrestling event that took place in aid of NTUK

Read More

2019 NF Conference

Find out more about the 2019 NF Conference being hosted by our friends across the pond the CTF

Read More

Kate Swallow’s Fantastic Fundraiser at the Tipsy Pig

Find out more about the succesful and throughly enjoyed charity music event hosted by Kate Swallow at the Tipsy Pig

Read More

Support Specialist: One of Many Cases

Have a read about a specific case study detailing the kind of work our support specialists offer to those with NF

Read More

Thank You James Gamble!

James Gamble just completed an incredible fundraiser in which he has cycled a total of 980 miles for NTUK! Find out more here

Read More

Teagan Martin’s first day at Canterbury Secondary School

Have a read about the incredible young girl who continues to defy the odds here

Read More

Kloe van der Merwe - Our NF hero as told by Mum Candice

Have about the incredibly brave young girl as told by her Mum Candice

Read More