Research call: Does neurofibromatosis affect how you feel about your body?
28 January 2021
Kate Adkins is a researcher and Trainee Clinical Psychologist based at the University of Sheffield. As part of her doctoral research, she is interested in improving self-help interventions for people living with neurofibromatosis and dermatological conditions.
If neurofibromatosis affects how you feel about your body, please consider helping psychologists test a 1-week online writing intervention. By taking part you will be helping us learn whether the intervention could help improve body image for other individuals living with a range of dermatological conditions and be in with a chance to win a £50 voucher of your choice.
Who can take part?
Anyone:
- Age 18 or over.
- Living with a condition that affects the skin (e.g. neurofibromatosis).
- Who feels their condition negatively impacts how they feel about their body.
- Able to read and write in English.
What will it involve?
You will be asked to complete three 15-minute online writing tasks over the course of a week. You will also be asked to complete several questionnaires before the first writing task, after the final writing task and one month later. As this is a randomised controlled trial, you will be randomly assigned to either: (1) the writing intervention or (2) a control writing task. If you are allocated to the control tasks, you will have access to the intervention material at the end of the study.
Please follow the link below to find out more.
Please contact Dr Kate Adkins (Trainee Clinical Psychologist, University of Sheffield) via k.adkins@sheffield.ac.uk for further information.
Filter News

Laura’s NF1 story
Laura is doing a skydive fundraiser to raise awareness & funds for NTUK, after her daughter was diagnosed with NF1
Read More
Disfigurement equality at work - research
This research study by Queen Mary University, London, aims to improve workplace equality for people with disfigurements
Read More
RAISING THE ROOF: CHARITY COMEDY NIGHT IN AID OF NERVE TUMOURS UK
Join us in London on our first comedy night to celebrate 40 years of Nerve Tumours UK
Read More
NF1 stem cell research study
Julieta is carrying out stem cell research to understand brain development in those with NF1
Read More
Ava-Lily’s NF1 story
Ava-Lily is thriving at school despite various NF1 related difficulties - read her story
Read More_370x280_800_600_s_c1.jpg)
Westminster Virtual Rare Disease Day 2022 Reception
NTUK joined the annual international event aimed at raising awareness & highlighting the needs of people with rare diseases
Read More
Rare Disease Day 2022
Nerve Tumours UK joins events showcasing Rare Disease Day, hosted by the Genetic Alliance, on 28 February 2022
Read More
Runderpants Winchester 2022
The Runderpants fun run makes a successful return to Winchester
Read More
NF1 Research study with fly model
How can studying the brain of a fruit fly help with understanding of NF1?
Read More