Research call: Does neurofibromatosis affect how you feel about your body?
28 January 2021
Kate Adkins is a researcher and Trainee Clinical Psychologist based at the University of Sheffield. As part of her doctoral research, she is interested in improving self-help interventions for people living with neurofibromatosis and dermatological conditions.
If neurofibromatosis affects how you feel about your body, please consider helping psychologists test a 1-week online writing intervention. By taking part you will be helping us learn whether the intervention could help improve body image for other individuals living with a range of dermatological conditions and be in with a chance to win a £50 voucher of your choice.
Who can take part?
Anyone:
- Age 18 or over.
- Living with a condition that affects the skin (e.g. neurofibromatosis).
- Who feels their condition negatively impacts how they feel about their body.
- Able to read and write in English.
What will it involve?
You will be asked to complete three 15-minute online writing tasks over the course of a week. You will also be asked to complete several questionnaires before the first writing task, after the final writing task and one month later. As this is a randomised controlled trial, you will be randomly assigned to either: (1) the writing intervention or (2) a control writing task. If you are allocated to the control tasks, you will have access to the intervention material at the end of the study.
Please follow the link below to find out more.
Please contact Dr Kate Adkins (Trainee Clinical Psychologist, University of Sheffield) via k.adkins@sheffield.ac.uk for further information.
Filter News

RideLondon FreeCycle Sunday 29th May
Join Nerve Tumours UK on the official RideLondon Day 29th May 2022
Read More
RAISING THE ROOF COMEDY NIGHT
First night on the NTUK 40 years Comedy Circuit 2022 at London's Backyard Comedy Club
Read More
Chloe’s NF1 story
Chloe gives an honest assessment about coming to terms with having NF1 and how it has made her determined & strong
Read More
“Happy Easter”
A message from Karen, our Charity Director, wishing you a very Happy Easter!
Read More370x280_800_600_s_c1.jpg)
Lisa helps Shine a Light on Neurofibromatosis in Belfast
Lisa has NF1, & lobbied the Belfast Lord Mayor to get Belfast City Hall lit up blue on Neurofibromatosis Day, 17th May
Read More
Alex’s NF1 story
Alex describes her life with NF1, growing up in care, doing adaptive boxing & gym classes & getting NCFE Care qualifications
Read More
Sumeeth’s Schwannoma story
Sumeeth, thought nothing of a muscle twitch after a hangover - it was the first symptom that led to a Schwannoma diagnosis
Read More
Laura’s NF1 story
Laura is doing a skydive fundraiser to raise awareness & funds for NTUK, after her daughter was diagnosed with NF1
Read More
Disfigurement equality at work - research
This research study by Queen Mary University, London, aims to improve workplace equality for people with disfigurements
Read More