Rarefest 2020
20 November 2020
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The festival covers Neurofibromatosis and has various speakers from the NF community as part of its program.
In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.
RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above. For a peek of what you can expect, head to our highlights, speakers and exhibitors’ pages brimming with cool companies, scientists, tech experts, health pros and patients taking part.
Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!
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Nicks Triathlon in Support of his daughter Eilidh
Find out more about Nick's Triathlon and his daughter's experiences with NF1 here:
Read MoreTom GK- Hearing Loss: The Musical
Find out more about the musical and how you can secure your ticket here
Read MoreNerve Tumours UK joins the “Embracing Complexity” Coalition
Find out more about the coalition we have decided to join
Read MoreResearching NF1
Rory Deasy has conducted research into the treatment of children with NF1. Here he talks about his research journey.
Read MoreMegan’s Journey
Megan talks about her experiences of being a student with NF and what she took away from the NF conference in San Fransico
Read MoreAldo goes to Primary School
Find out more about the book aimed at helping people understand the life of an autistic boy going through primary school here
Read MoreEva’s Races
Eva has run 3 races over the past year for NTUK, find out what has been motivating her here:
Read MoreCarl’s Story in memory of his sister who had NF2
Carl recently hosted his own wrestling event in memory of his late sister, find out more on his story here:
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