Rarefest 2020
20 November 2020
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The festival covers Neurofibromatosis and has various speakers from the NF community as part of its program.
In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.
RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above. For a peek of what you can expect, head to our highlights, speakers and exhibitors’ pages brimming with cool companies, scientists, tech experts, health pros and patients taking part.
Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!
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![](https://nervetumours.org.uk/images/made/images/common/World_NF2_Day_2020_370x280_800_600_s_c1.jpg)
World NF 2 Day May 22nd 2020
See what we're up to for this World Neurofibromatosis Type 2 day
Read More![](https://nervetumours.org.uk/images/made/images/common/Mary_NHS_NF_Nurse_Statement_370x280_800_600_s_c1.jpg)
Statement by Mary Thomas Clinical Neurofibromatosis Nurse UK
A statement on coronavirus by Mary Thomas clinical nurse at Guy's and St Thomas' NHS Foundation Trust
Read More![](https://nervetumours.org.uk/images/made/images/common/O2_Guildhall__Southampton_370x280_800_600_s_c1.jpg)
Shine a Light 2020 Success!
Check out some amazing blue buildings that took part in our Shine a Light On Neurofibromatosis 2020 campaign
Read More![](https://nervetumours.org.uk/images/made/images/common/Sarah_Shine_A_Light_on_Neurofibromatosis_-_370x280-preview_800_600_s_c1.jpg)
Sarah’s Story as told by her Father Clemence
Read more about Sarah's story and her Shining a Light on NF from home for World NF Awareness Day!
Read More![](https://nervetumours.org.uk/images/made/images/common/helen-tomkins_370x280_800_600_s_c1.png)
Statement by Helen Tomkins our Specialist Neurofibromatosis Nurse UK
A statement on coronavirus by Helen Tomkins specialist Neurofibromatosis nurse in Devon & Cornwall
Read More![](https://nervetumours.org.uk/images/made/images/common/Courtney_Deaken_Story-_370x280_800_600_s_c1.png)
Courtney’s Story
Read more about Courtney's NF Story and how she overcomes her difficulties
Read More![](https://nervetumours.org.uk/images/made/images/common/Toms_NF2_Story_-_No_Laughing_Matter_preview_website_370x280_800_600_s_c1.png)
No Laughing Matter
Tom is a former journalist, here he describes his journey from music journalism to comedy, & what his NF2 has to do with it
Read More![](https://nervetumours.org.uk/images/made/images/common/Shine-a-Light_1600x900px_1600_900_80_s_c1StaySafepreview_800_600_s_c1.png)
Shine A Light on Neurofibromatosis 2020
Find out what we're up to for our Shine A Light campaign this year!
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