Rarefest 2020
20 November 2020
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The festival covers Neurofibromatosis and has various speakers from the NF community as part of its program.
In true 2020 style, RAREfest20 promises to be a virtual feast that will spark curiosity, challenge perceptions, inspire innovation and collaboration and give a voice to rare disease patients and their families.
RAREfest20 has patients at its heart with science and technology running through its veins! The full live programme is ready to view in the agenda tab above. For a peek of what you can expect, head to our highlights, speakers and exhibitors’ pages brimming with cool companies, scientists, tech experts, health pros and patients taking part.
Open to the general public, patients, families, children, students, healthcare professionals, researchers, companies. To everyone!
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Your NF questions answered directly from the Top!!
Get answers to your NF questions directly from our medical advisors
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG-20191225-WA0020_370x280_800_600_s_c1.png)
Planning for a Family - Elena & Nicks Story
Elena describes their journey using Preimplantation Genetic Diagnosis (PGD) to prevent passing on NF1 to their baby.
Read More![](https://nervetumours.org.uk/images/made/images/common/Juliette_Buttimore_Lead_CNS_-_Skull_base__NF2_(ENT)_Clinical_Lead_–_NF2_MidlandsEast370x280_800_600_s_c1.jpg)
Statement by Juliette Buttimore Clinical Lead Nurse– NF2 Midlands/East
A statement on coronavirus by Juliette Buttimore Lead Specialist NF2 Nurse at Addenbrooke's Hospital in Cambridge
Read More![](https://nervetumours.org.uk/images/made/images/common/Stuart_Magazine_issue_5_image_3-edit_370x280_800_600_s_c1.jpg)
Stewart Lee Member of the Board of Trustees who has NF2 on Lockdown Life
Let's celebrate World NF2 Day, because we live our lives with such a hard condition; let's focus on how amazing we all are!
Read More![](https://nervetumours.org.uk/images/made/images/common/World_NF2_Day_2020_370x280_800_600_s_c1.png)
Tom GK in Lockdown
NF2 can be a lonely business; but now there are 60-odd million people in Britain who have all learned how precious & fragile
Read More![](https://nervetumours.org.uk/images/made/images/common/World_NF2_Day_2020_370x280_1_800_600_s_c1.jpg)
Emily Owen Member of the Board of Trustees takes over our Social
‘All the World’s a Stage…’ (Shakespeare) Welcome to our World NF2 Day 2020 Theatrical Entertainment
Read More![](https://nervetumours.org.uk/images/made/images/common/Changing_Faces_Logo_370x280_800_600_s_c1.jpg)
Face Equality Week 2020
Changing Faces continues to campaign amidst the current crisis - Face Equality Week
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