10 February 2022
RARE DISEASE DAY 2022 WILL TAKE PLACE ON MONDAY 28 FEBRUARY.
It will be celebrated in over 85 countries worldwide to raise awareness and generate change for 300 million people living with a rare condition, and their families and carers.
3.5 million in the UK are affected by a rare condition – that’s 1 in 17 people.
Covid-19 has been extremely challenging for the UK’s rare community with shattered support routines, reduced access to treatment and healthcare, and the increased isolation of shielding.
The pandemic has also shone a light on the increased health inequalities experienced by many marginalised groups in the UK, especially those from a black or ethnic minority community.
Young people have had their lives severely disrupted by schools and colleges closing. For many in the rare community, their rare condition is just one of many factors they are having to manage.
Rare Diseases Day 2022 - 1 day of recognition against 365 days reality for those affected by Neurofibromatosis, Nerve Tumours UK is aiming to make their everyday better.
We at Nerve Tumours UK are specifically focusing on the stories and fundraisers that highlight the impact of the condition and raise awareness throughout the year.