Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
17 July 2019
Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
The following has been taken from Health Data Management's website
"A Children’s National researcher, Marius George Linguraru, has been awarded a Congressionally Directed Medical Research Program grant through the Department of Defense. This grant enables Linguraru to develop a quantitative MRI application that can inform treatment decisions by accurately identifying which children with neurofibromatosis type 1 (NF1) and optic pathway glioma (OPG) are at risk of losing their vision
This project will provide doctors with certainty when identifying which children with NF1-OPG will lose vision—and when the vision loss will occur—through computational modeling validated in clinics worldwide. Using Linguraru's technology, diagnosis can occur before visual acuity starts to decline, providing an opportunity for early intervention in children at risk for vision loss.
Early diagnosis and treatment can help to avoid lifelong visual impairment for patients who need intervention while preventing unnecessary MRIs and aggressive chemotherapy in pediatric patients who are not at risk of vision loss."
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Mary-nurse-specialistPage-Preview-800-x-500-px_800_600_s_c1.png)
Mary Thomas wins Specialist Nurse of the Year 2019!
Have a read about the Guy's and St Thomas' Celebration of International Nurses Day here
Read More![](https://nervetumours.org.uk/images/made/images/common/Luke-and-his-NF-NinjasPage-Preview-800-x-500-px_800_600_s_c1.png)
Luke and his NF Ninjas
Have a read of Luke's story of growing up with NF and how he plans to bring his chidren up proud of their NF as well.
Read More![](https://nervetumours.org.uk/images/made/images/common/Stannington-park-Page-Preview-800-x-500-px_800_600_s_c1.png)
Stannington Community Association’s Easter Fête
Stannington Community Association's Easter Fête was a success! Read about this years superb event here:
Read More![](https://nervetumours.org.uk/images/made/images/common/Marathon-Page-Preview-800-x-500-px_800_600_s_c1.png)
London Marathon 2019: 26 hard miles for 26,500 people affected
Thank you so much to all our incredible Marathon runners for going the extra mile (or 26)!
Read More![](https://nervetumours.org.uk/images/made/images/common/youtubePage-Preview-800-x-500-px_1_800_600_s_c1.png)
Take a look at our new YouTube Channel
Take a look at our new YouTube channel and how to subscribe here
Read More![](https://nervetumours.org.uk/images/made/images/common/Pear-KellyPage-Preview-800-x-500-px_800_600_s_c1.png)
Meet Pearl
Pearl Kelly is 22, and has multiple complex problems caused by her NF1. Here she explains her outlook on life
Read More![](https://nervetumours.org.uk/images/made/images/common/JoannaPage-Preview-800-x-500-px_800_600_s_c1.png)
Meet Joanna
Joanna is a lecturer in Mitochondrial Genetics at Newcastle University, she recently ran the London Marathon. Meet her here
Read More![](https://nervetumours.org.uk/images/made/images/common/Maia-Thornton-ResearchPage-Preview-800-x-500-px_800_600_s_c1.png)
New Research Into Appearance Altering Conditions
Maia Thornton PhD is looking for both parents and professionals who care for someone with an appearence altering condition
Read More![](https://nervetumours.org.uk/images/made/images/common/AdamPage-Preview-800-x-500-px_800_600_s_c1.png)
Adam’s Story
Adam has NF1 yet is still one of the most active and athletic people in the UK. Read about his fascinating story here:
Read More