Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
17 July 2019
Quantitative MRI Application being developed to help prevent vision loss in NF1 patients
The following has been taken from Health Data Management's website
"A Children’s National researcher, Marius George Linguraru, has been awarded a Congressionally Directed Medical Research Program grant through the Department of Defense. This grant enables Linguraru to develop a quantitative MRI application that can inform treatment decisions by accurately identifying which children with neurofibromatosis type 1 (NF1) and optic pathway glioma (OPG) are at risk of losing their vision
This project will provide doctors with certainty when identifying which children with NF1-OPG will lose vision—and when the vision loss will occur—through computational modeling validated in clinics worldwide. Using Linguraru's technology, diagnosis can occur before visual acuity starts to decline, providing an opportunity for early intervention in children at risk for vision loss.
Early diagnosis and treatment can help to avoid lifelong visual impairment for patients who need intervention while preventing unnecessary MRIs and aggressive chemotherapy in pediatric patients who are not at risk of vision loss."
Filter News
![](https://nervetumours.org.uk/images/made/images/common/DSC_0096_London_Marathon_2019_-_Group_photo_preview_website_370x280_800_600_s_c1.png)
A Big “Thanks” for Team Nerve Tumours UK running the London 2020 Marathon!
We want to give a great big thank you to all of you who took part in this year's Virtual London Marathon!
Read More![](https://nervetumours.org.uk/images/made/images/common/NTUK_video_thumbnail_high_res_370x280_800_600_s_c1.png)
How To Use Lipspeakers – Support For Those Affected By Hearing Loss
Frances Harris at Bridge Lipspeaking shares how lipspeaking can help those with hearing loss or total deafness caused by NF2
Read More![](https://nervetumours.org.uk/images/made/images/common/Oxford_University_(Naomis_photo)_370x280_800_600_s_c1.png)
Living with Neurofibromatosis Type 1: An Anthropological Study
Get involved and share your story to help increase cross-cultural understanding and awareness of NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/Nimo_NF1_Story_370x280_preview_800_600_s_c1.png)
Nimo’s NF1 Story
Read Nimo's incredible journey of coming to terms living with NF1 & how Nerve Tumours UK has changed her life for the better
Read More![](https://nervetumours.org.uk/images/made/images/common/Georgia_Schwannoma_Story_370x280_800_600_s_c1.png)
Georgia’s Schwannoma Story
Read Georgia's inspirational Schwannoma story and how she had to fight for her diagnosis
Read More![](https://nervetumours.org.uk/images/made/images/common/Screenshot_2020-09-30_Changing_Faces_»_New_research_on_experiences_of_men_with_visible_differences_370x280_800_600_s_c1.png)
Voices of Visible Difference #YoureNotAlone Men’s Campaign
Two-thirds of men with visible difference are affected in their day to day life. Read more
Read More![](https://nervetumours.org.uk/images/made/images/common/Childhood_Neurological_Conditions_Survey_Website_Header_370x280_800_600_s_c1.png)
Childhood Neurological Conditions Survey
Find out how you can help shape the future of treatment for Childhood Neurological Conditions such as Neurofibromatosis
Read More![](https://nervetumours.org.uk/images/made/images/common/Karen_Portrait_Colour_370x280_2_800_600_s_c1.jpg)
We’re Here for You, Our NF Community.
A big thank you from Karen our Charity Director - your support has been amazing!
Read More![](https://nervetumours.org.uk/images/made/images/common/Global_Genes_Virtual_event_370x280_800_600_s_c1.jpg)
Global Genes LIVE!
Join Global Genes September 15-25, 2020 at Global Genes LIVE! A RARE Patient Advocacy (un)Summit.
Read More