Helpline 07939 046 030

Pipers Rocks

04 June 2020

Gabriella or Gaby, as her friends and family know her, was diagnosed with NF1 from a young age.

Her positivity and determination has inspired her school to get involved in some amazing fundraising efforts to help support people across the UK with Neurofibromatosis.

When mum Helen first found out about Gaby’s tumour and diagnosis of NF1 it was a heavy burden to carry. But in the years since then Team Gaby have come together to support each other along the way, with several of the family, including mum Helen, Auntie Jane & Cousin Kate, running in the London Marathon for Nerve Tumours UK.

Gaby’s positivity has now spread even further, getting her school, Pipers Corner to Rock ‘n’ Roll with their live ‘Pipers Rock’ event – with Gaby playing the bass guitar.

Gaby’s 26 friends also got involved with our World NF Day Challenge, running, walking and cycling to Shine a Light on NF. Read here about their remarkable fundraising exploits.

Gaby’s bass guitar teacher, Mark Campbell led the organisation of the event which took place at the school theatre on Wednesday 26th Feb 2020. Mark wanted to help Gaby & support Nerve Tumours UK.

The Rocktastic event was aimed at the whole school with students from Year 5 to Year 11 all getting involved. The younger students kicked off the first half performing in their different bands and the older students followed in the second half. Since Gaby is currently in Year 8, she performed with her band in the second half, showing us all her bass rift mastery.

By selling tickets to the ‘Pipers Rock’ event and holding an auction in the interval, Gaby’s school helped to raise donations for Nerve Tumours UK.

"For me, it’s all about getting the message out about what NF is so people don’t judge Gaby (and others like her) and understand what the condition is and how it is to live with it.""

– Helen (Mum)

World NF Day

Despite Gaby’s school friends being separated for World NF Day, as part of the current lockdown situation, they still managed to get out individually and show their support. 26 of Gaby’s school friends ran, walked or cycled one mile; getting out there and doing their bit to support their friend. Their efforts also went a long way to spread awareness of neurofibromatosis on World NF Day, May 17th.

"“Pipers Corner School generally has been amazing at supporting Gaby, making her feel included and raising awareness of the condition to help it become more accepted and understood.” "

– Helen

Nerve Tumours UK want to thank Team Gaby and Pipers School for their incredible fundraising feats! Your efforts go a long way in helping our NF community, we need more people like you.

Filter News

Filter by Date

Nerve Tumours UK takes part in the Genomics Showcase

Find out how you can take part in the Genomics showcase – sign up for free!

Read More

Kate “NF1 Mummy” Your Questions on parenting answered:  World Neurofibromatosis Day 17 May 2021

Have you got questions about your child’s NF diagnosis? Send them into us for World NF Awareness Day

Read More

Jo’s 160 Mile walk for NTUK!

Read Jo's Story as she prepares to take on a 160 mile epic walking challenge for Nerve Tumours UK.

Read More

NF2 & Identity Research Study

If you have NF2, Suzi want's to hear from you! Find out more about her research study relating identity & NF2

Read More

Challenge 100 – Everyone’s invited

Take on 100 of anything you can think of and fundraise to support our NF community!

Read More

A very “Happy Easter” to you all!

A message from Karen, our Charity Director, wishing you all a very Happy Easter!

Read More

Stuart & William’s Story: Turning blue for World NF Month

Check out Stuart & William's creative fundraiser for World Neurofibromatosis Awareness Month

Read More

Coordinated Care of Rare Diseases Study at UCL

Find out the results to the Coordinated Care of Rare Diseases Study at UCL

Read More

Who is exempt from wearing a face mask? UK exemptions rules explained - and how to get a hidden disabilities exemption

Find out the up to date information on face mask rules in your area

Read More