Nurse’s Conference 2019
11 October 2019
Nurse's Conference 2019
This week we had our yearly specialist advisor meeting with members of the Nerve Tumours UK office and board in London. In attendance were Carolyn Smith, Ruth Drimer, Samantha Gaden, Helen Tomkins, Kirsty Bready, Rachel Jones and Melanie Murrell.
The aim of the meeting was to exchange and update our specialist NF nurses on what is happening in the field, what areas are geographically covered and what new projects are being initiated e.g. iNForm for schools.
This meeting helps us as a charity better understand how we can support our specialist nurses and those affected by NF. We are extremely grateful for the support that our Support Specialists are providing to our community day in day out.
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Filter News
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Celtic Crossing NTUK fundraiser
On Wednesday 28 June, a team of 8, led by Paul Aubery, paddled from the Isles of Scilly to Sennen Cove in Cornwall.
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NF Awareness Day Fundraiser at Fyling Hall School
Bea's school held a blue & green themed fundraiser on World NF Awareness Day
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Eden Study
Investigating early social, communication and attention development in babies who have NF1/ or a parent has NF1
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Bethany’s South Coast Challenge
Bethany is taking on the 25km South Coast challenge to give back after recovering from nerve tumour surgery
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Eden-P Research Study
Participants required for research study for pregnant women who have a family history of NF1
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Resources Survey: Initial Diagnosis
Take part in our survey and help shape Nerve Tumours UK's support service for those newly diagnosed with NF
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Appearance Collective NF1 support survey
Appearance Collective, Centre of Appearance Research (UWE) online survey on what support is needed for those affected by NF1
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Shine A Light - Swimming for World NF Day
Mel, one of our Specialist NF Nurses, will be swimming 17 miles to Shine a Light during World NF Month
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