Nurse’s Conference 2019
11 October 2019
Nurse's Conference 2019
This week we had our yearly specialist advisor meeting with members of the Nerve Tumours UK office and board in London. In attendance were Carolyn Smith, Ruth Drimer, Samantha Gaden, Helen Tomkins, Kirsty Bready, Rachel Jones and Melanie Murrell.
The aim of the meeting was to exchange and update our specialist NF nurses on what is happening in the field, what areas are geographically covered and what new projects are being initiated e.g. iNForm for schools.
This meeting helps us as a charity better understand how we can support our specialist nurses and those affected by NF. We are extremely grateful for the support that our Support Specialists are providing to our community day in day out.
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Filter News
![](https://nervetumours.org.uk/images/made/images/common/Helen_Tomkins_370x280_800_600_s_c1.jpg)
Meet Helen
Helen is the Specialist NF Advisor for Devon and Cornwall and is based at Derriford Hospital in Plymouth.
Read More![](https://nervetumours.org.uk/images/made/images/common/Rebecca_Rennison_370x280_800_600_s_c1.jpg)
Meet Rebecca
Specialist NF Nurse Rebecca is Lead Nurse, NTUK and is based at the Genetics Institute at the Centre for Life in Newcastle
Read More![](https://nervetumours.org.uk/images/made/images/common/NTUK_Neuro_Alliance_Huntingtons_logos_370x280_800_600_s_c1.jpg)
World Mental Health Day 2023
NTUK (as part of the Neurological Alliance) has signed a joint letter aimed at improving access to mental health services
Read More![](https://nervetumours.org.uk/images/made/images/common/research_images_370x280_800_600_s_c1.jpg)
CAR Research visible difference experiences during recruitment
Research participants required, find out more and take part
Read More![](https://nervetumours.org.uk/images/made/images/common/NF_Academy_group_shot_3_370x280_800_600_s_c1.jpg)
NF Academy 2023 - Ella’s Blog
Ella, who has NF1, attended the week-long 2023 NF Academy in Portugal, meeting young adults with NF from all over Europe
Read More![](https://nervetumours.org.uk/images/made/images/common/Sadali__Sanjana_370x280_800_600_s_c1.jpg)
University of Manchester Research
Read about the latest PHD research, involving Nerve Tumours UK, at the University of Manchester
Read More![](https://nervetumours.org.uk/images/made/images/common/Manchester_Uni__NHS_logo_370x280_800_600_s_c1.jpg)
New Research Study for Children and Young People with NF1
Find out more about the study and how you can participate here
Read More![](https://nervetumours.org.uk/images/made/images/common/national-cancer-institute-bwMhq_itmMU-unsplash_370x280_800_600_s_c1.jpg)
Neurofibromatosis Type 2 name change
The new name for Neurofibromatosis Type 2 is NF2-related-Schwannomatosis (NF2)
Read More![](https://nervetumours.org.uk/images/made/images/common/Jensen_1_370x280_800_600_s_c1.jpg)
Jensen’s NF1 story
Stuart describes Jensen's first days post birth, subsequent diagnosis of NF1 plus his & wife Claire's hopes for his future
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