Helpline 07939 046 030

Noah’s Inspirational Fundraising Story

03 March 2020

Noah was diagnosed with Neurofibromatosis type 2 after being quite poorly when born. Over the years he has beaten the odds and become a truly inspirational individual – helping others along the way!

Noah’s fundraising journey began when he was 7 or 8 years old and he was visiting the Serrenu (sparkle) Children’s Centre in Wales for physio when he overhead people talking about funding cuts.

He was mortified to learn that funding would be reduced for the centre and that many children and young people with disabilities and developmental difficulties would no longer benefit from the vital supportive care, treatment and activities.

From then on he has made it his passion to fundraise for people in need - completing many runs/ walks and bake sales for various children’s charities.

This year is the fourth year that Noah will be running his Easter egg appeal which he has aptly named “Make Someone Smile” – his ethos is that one small good deed is all it takes to make someone smile.

One of Noah’s chosen charities to donate to is Woman’s Aid, Noah selected them after researching and finding out that there are so many children without a place to call home or fleeing violence and finding this very upsetting.

Noah other selected charity he donates to is Llamau. After recently turning 13 and realising that at 16 support for children is dramatically reduced and many youngsters who have had support before no longer have the same support and end up on the street.

NF2 is a very complex condition but not many people are aware of it, we need to improve awareness of Neurofibromatosis type 2 to improve funding for a cure. It’s people like Noah who even though they have the odds stacked against them they remain strong and do incredible things for other people – spreading joy wherever they can!

Filter News

Filter by Date
Category
Reset

Eden Study

Investigating early social, communication and attention development in babies who have NF1/ or a parent has NF1

Read More

Douglas Thomson’s NF1 Story

Douglas describes life with NF1 and how losing his leg was one of the best things to happen to him

Read More

Tricia’s Wingwalk and Birthday Fundraiser for Sarah and Keith

Tricia's fundraising wingwalk in memory of her daughter Sarah who had NF1, and to remember her father Keith

Read More

Student Voice Prize 2021

The 2021 Student Voice Prize opens on 6th October! #DareToThinkRare for the 8th annual essay competition!

Read More

Centre for Appearance Research - Parent Support Materials Study

The Centre for Appearance Research is doing a study on parent support materials - can you help?

Read More

Centre for Appearance Research - YP Face IT

YP Face IT offers online support for young people with conditions or injuries affecting their appearance

Read More

Counselling support from Changing Faces

Changing Faces - Counselling support: confidential one to one support sessions for people with a visible difference

Read More

Tim’s Story: Living With Neurofibromatosis – it’s a family thing

Tim tells us how Nerve Tumours UK proved to be an invaluable resource and support to him and his family as he was growing up

Read More

Dalvinder’s 100km Ultra Challenge for NF

Dalvinder on the 100km Ultra Challenge Thames Path walk to raise money for NF

Read More