NF1 Army’s incredible 10 million steps fundraiser!
02 July 2020
Our most recent fundraiser has been completed in lockdown. In June 2020 a group of us embarked upon a mission to walk 10 Million Steps between us to raise money for 'NF1 Army'. NF1 Army is a fundraising mission I set myself just over a year ago now and it has so far raised just over £12,000. It started out as a personal mission to raise more awareness and support more research after my daughter Jessica was diagnosed with NF1. It has become a real team effort and there is a great sense of community around all of our fundraisers which we really enjoy.
The money we raise will help to fund research at Manchester Children's Hospital as Jessica has been supported by them throughout her life and in the process we are also raising lots of much needed awareness for NF1. I realised early after Jessica had been diagnosed that not enough people have heard of this condition and I am determined to change that and make a difference through the fundraising we do.
'Team 10 Million' has been fantastic.
NF1 Army FaceBook Page
We have been recording and reporting in our steps daily on our Facebook page 'Team 10 Million' and supporting each other along the journey. We've had some amazing achievements and fun with our Wall's of Fame -
30k Steps Wall of Fame

40k Steps Wall of Fame

50k Steps Wall of Fame

Most importantly we've been a team and every step really did count. We reached and exceeded our goal and raised over £2000 in the process which we are overjoyed about. I genuinely believe that we can make a positive change if we all come together and start to spread the word.
Filter News

Joanna’s story
Joanna highlights the importance of women with NF1 receiving mammograms, and being able to train for the 2023 London Marathon
Read More
Mobile Device Usage by Young Children with Special Educational Needs (SEN) or Disabilities in Their Home
Research: exploring current use of mobile devices in the home - parents' perspectives & experiences
Read More
NF2 and Radiotherapy
Research: Studying the risk of serious side effects of radiotherapy in people with NF2
Read More
Sally’s NF1 story
Sally tells a story that will resonate - devastation at diagnosis, gratitude for incredible support & making the most of life
Read More
National NF2 Meeting
A report from the annual National NF2 meeting, with NTUK in attendance
Read More_370x280_800_600_s_c1.jpg)
NF International and National meetings in Manchester
NTUK reports back from the NF Patients Community Day and the 20th European Neurofibromatosis Meeting in Manchester
Read More
Mindful Parenting Study
Research study: Mindful Parenting Programme for parents or carers of children aged 4-16 living with a visible difference
Read More
Adam Buxton and some colleagues - NTUK Comedy Night
Join us at the Union Chapel, London on Thursday 24th November for the latest comedy night to celebrate 40 years of NTUK
Read More
We know 26, 500 people who need your help
To expand our Specialist Neurofibromatosis Network, we need to continue raising awareness of what we do
Read More