NF Said
05 February 2021
Daisy is taking on a 38-mile running challenge for her sister Millie who was diagnosed with NF Type 2 roughly two years ago, after a number of misdiagnoses. She wants to run one mile for each person who is diagnosed with NF Type 2 each year – a self-proclaimed non-runner she will be lacing up her running shoes throughout the month of February to raise funds in support of her sister.
Daisy and Millie are best friends and despite a five-and-a-half-year age gap, they both have a love of netball. Millie’s Neurofibromatosis has knocked her confidence recently but her sister Daisy was there to pick her up.
“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”

Daisy wants to raise awareness of NF Type 2 so more people understand the difficulties and challenges people with Neurofibromatosis face in their day to day life.
Help support Daisy on her running challenge
Filter News

Appearance, Identity & Law workshop
Appearance, identity & law workshop at Queen Mary University London School of Law
Read More
Alfred the Pirate
Seven year old Alfred the Pirate takes NF1 in his stride, and is supported by Specialist NF Nurse Mel
Read More
Nicole’s NF1 story & skydive
Nicole shares her NF1 journey and her motivation to inspire children with disabilities to achieve whatever they want to do
Read More
Sarah’s NF1 story & Langmead fundraising
Sarah describes her daughter Hannah's NF1 journey and organising a corporate charity day fundraiser at Langmead Herbs
Read More
Molly & Alfie
Mollie has NF1 - her big brother Alfie & friend Kaelan are running to raise awareness & funds for NTUK
Read More
Study - Resilient Youth with NF
Adolescents with NF (12-17 years old) are wanted for an Online Harvard research project
Read More
Jamie’s NF1 story
Jamie was inspired by reading NTUK stories and is now using his own experiences to help raise awareness of Neurofibromatosis
Read More
CAR Relationships study
CAR survey: support materials for adults with appearance-affecting conditions, focussed on intimacy & romantic relationships
Read More
Glasgow Comedy Night
Last night was the turn of Glasgow's The Stand Comedy Club to host the NTUK Comedy Circuit 2022
Read More