NF Said
05 February 2021
Daisy is taking on a 38-mile running challenge for her sister Millie who was diagnosed with NF Type 2 roughly two years ago, after a number of misdiagnoses. She wants to run one mile for each person who is diagnosed with NF Type 2 each year – a self-proclaimed non-runner she will be lacing up her running shoes throughout the month of February to raise funds in support of her sister.
Daisy and Millie are best friends and despite a five-and-a-half-year age gap, they both have a love of netball. Millie’s Neurofibromatosis has knocked her confidence recently but her sister Daisy was there to pick her up.
“I wanted to build her confidence so dropped down teams so I was able to be on the court with her at the same time, it didn’t take a lot for her to get back into the swing of things.”
![](/images/common/IMG_5169_edit.png)
Daisy wants to raise awareness of NF Type 2 so more people understand the difficulties and challenges people with Neurofibromatosis face in their day to day life.
Help support Daisy on her running challenge
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Manchester_university_logo_370x280_800_600_s_c1.jpg)
NF2 and Radiotherapy
Research: Studying the risk of serious side effects of radiotherapy in people with NF2
Read More![](https://nervetumours.org.uk/images/made/images/common/Sally_370x280_800_600_s_c1.jpg)
Sally’s NF1 story
Sally tells a story that will resonate - devastation at diagnosis, gratitude for incredible support & making the most of life
Read More![](https://nervetumours.org.uk/images/made/images/common/PXL_20221104_123231157_370x280_800_600_s_c1.jpg)
National NF2 Meeting
A report from the annual National NF2 meeting, with NTUK in attendance
Read More![](https://nervetumours.org.uk/images/made/images/common/PHOTO-2022-10-10-12-52-20_(2)_370x280_800_600_s_c1.jpg)
NF International and National meetings in Manchester
NTUK reports back from the NF Patients Community Day and the 20th European Neurofibromatosis Meeting in Manchester
Read More![](https://nervetumours.org.uk/images/made/images/common/Two_Hearts_preview_370x280_800_600_s_c1.jpg)
Mindful Parenting Study
Research study: Mindful Parenting Programme for parents or carers of children aged 4-16 living with a visible difference
Read More![](https://nervetumours.org.uk/images/made/images/common/Comedy_night_Union_Chapel_370x280_800_600_s_c1.jpg)
Adam Buxton and some colleagues - NTUK Comedy Night
Join us at the Union Chapel, London on Thursday 24th November for the latest comedy night to celebrate 40 years of NTUK
Read More![](https://nervetumours.org.uk/images/made/images/common/19738_News_Article_Cover_Image_370x280_800_600_s_c1.jpg)
We know 26, 500 people who need your help
To expand our Specialist Neurofibromatosis Network, we need to continue raising awareness of what we do
Read More![](https://nervetumours.org.uk/images/made/images/common/Helpline_new_370x280_800_600_s_c1.jpg)
The New National Helpline
The National Helpline is expanding to Monday, Wednesday and Friday, from early October
Read More![](https://nervetumours.org.uk/images/made/images/common/NTUK_office_team__Sam_370x280_800_600_s_c1.jpg)
London Marathon 2022
Congratulations to our 2022 London Marathon runners - thank you from the NTUK team
Read More