Nerve Tumours UK joins the “Embracing Complexity” Coalition
10 October 2019
Nerve Tumours UK joins the "Embracing Complexity" Coalition
Embracing Complexity is a coalition of leading UK charities working together to think differently about people with neurodevelopmental conditions (NDCs). It is common for people with NDCs to have more than one condition, yet current systems are set up to consider one diagnosis at a time. Their first report, published in May 2019 following a consultation of 500 people, found significant overlap in the challenges faced by people with neurodevelopmental conditions. They are calling for a more joined-up approach to diagnosis, services and research.
Nerve Tumours UK hopes that by joining this coalition we can work with other charities in the fight against neurodevelopmental conditions, such as learning disabilities which can be caused by NF1, or impairments in vision and hearing which can occur as a result of NF2.
If you would like to find out more about the coalition then you can visit their website below:
The coalition was set up the charity Autistica, a charity which aims at developing a brighter future through autism research. As a large percentage of those with NF are often affected by certain levels of autism across the autism spectrum, Autistica is a charity in which Nerve Tumours UK are looking forward to working with in the future.
The coalition was set up the charity Autistica
Visit their website![](/images/common/Autistica-Artboard-1.png)
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Siobhan_Harding-Lester_370x280_800_600_s_c1.jpg)
Meet Siobhan, our new Specialist Advisor for Northern Ireland
Meet Siobhan from Northern Ireland, our newest Specialist Advisor
Read More![](https://nervetumours.org.uk/images/made/images/common/Poppy_1_370x280_800_600_s_c1.jpg)
Poppy’s NF1 story
Poppy describes growing up with NF1 and fundraising for future research & treatment
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_4646_370x280_800_600_s_c1.jpg)
Meeting Alpha FX
NTUK Head Office visited Alpha FX to give a presentation on our work & how their support & donations help the NF Community
Read More![](https://nervetumours.org.uk/images/made/images/common/NA_logo_370x280_800_600_s_c1.jpg)
Nerve Tumours UK joins the Neurological Alliance
A coalition of over 70 organisations working together to transform quality of life for people with neurological conditions.
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_4791_370x280_800_600_s_c1.jpg)
Nerve Tumours UK Conference 2021
The first meeting since 2019 with our Specialist NF Advisors & Nurses, Head Office & Members of the Board of Trustees
Read More![](https://nervetumours.org.uk/images/made/images/common/Wing_Walk_Ailsa_photo_on_wing_waving_370x280_800_600_s_c1.jpg)
Tricia’s Wingwalk fundraiser
Tricia describes her wingwalk experience in celebration of her 75th birthday and in memory of her daughter Sarah, who had NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/834872_1052_00091_370x280_800_600_s_c1.jpg)
Stuart’s Schwannoma Story Part One
Stuart describes how certain symptoms led to a Schwannoma discovery
Read More![](https://nervetumours.org.uk/images/made/images/common/image1_370x280_800_600_s_c1.jpg)
Joy’s NF1 story
Joy describes living with NF1; her son's diagnosis and support at school; fundraising and shining a light on NF
Read More![](https://nervetumours.org.uk/images/made/images/common/1_Onno_Faber_at_a_meeting_this_summer_to_organize_his_hackathon_OF_370x280_800_600_s_c1.jpg)
A man on a mission: Onno Faber and his NF2 journey
Onno Faber - since NF2 diagnosis aged 33, Onno is a man on a mission. Article courtesy of NEO.LIFE
Read More