Nerve Tumours UK joins the “Embracing Complexity” Coalition
10 October 2019
Nerve Tumours UK joins the "Embracing Complexity" Coalition
Embracing Complexity is a coalition of leading UK charities working together to think differently about people with neurodevelopmental conditions (NDCs). It is common for people with NDCs to have more than one condition, yet current systems are set up to consider one diagnosis at a time. Their first report, published in May 2019 following a consultation of 500 people, found significant overlap in the challenges faced by people with neurodevelopmental conditions. They are calling for a more joined-up approach to diagnosis, services and research.
Nerve Tumours UK hopes that by joining this coalition we can work with other charities in the fight against neurodevelopmental conditions, such as learning disabilities which can be caused by NF1, or impairments in vision and hearing which can occur as a result of NF2.
If you would like to find out more about the coalition then you can visit their website below:
The coalition was set up the charity Autistica, a charity which aims at developing a brighter future through autism research. As a large percentage of those with NF are often affected by certain levels of autism across the autism spectrum, Autistica is a charity in which Nerve Tumours UK are looking forward to working with in the future.
The coalition was set up the charity Autistica
Visit their website![](/images/common/Autistica-Artboard-1.png)
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Rosalie_Ferner_370x280_800_600_s_c1.jpg)
Neurofibromatosis 1 in the 21st Century
Professor Rosalie Ferner delivers key speech “Neurofibromatosis 1 in the 21st Century” to the BPNA 2022 Annual Conference
Read More![](https://nervetumours.org.uk/images/made/images/common/image_(4)_370x280_800_600_s_c1.jpg)
The International Rare Disease Showcase 1st – 3rd February 2022
The International Showcase is a unique & important event, with interactive sessions taking place from 1st-3rd February 2022
Read More![](https://nervetumours.org.uk/images/made/images/common/Grace_Picture2_370x280_800_600_s_c1.jpg)
Grace’s NF1 story - Nothing stops me
Grace tells us how her NF1 hasn't stopped her from being active and achieving her goals
Read More![](https://nervetumours.org.uk/images/made/images/common/Mia_family_370x280_800_600_s_c1.jpg)
Mia’s NF1 story
Bridie & Warren describe their 17 month old daughter Mia's diagnosis with NF1
Read More![](https://nervetumours.org.uk/images/made/images/common/Ellie_on_rowing_machine_370x280_800_600_s_c1.jpg)
Richard & Diana’s 1,000,000 metre new rowing challenge
Diana & Richard have taken on a 1,000,000 metre rowing challenge in 100 days to raise funds & awareness
Read More![](https://nervetumours.org.uk/images/made/images/common/BZQO9932_370x280_800_600_s_c1.jpg)
A Message from our Charity Director
A message from Karen, our Charity Director, on looking forward to a special 2022
Read More![](https://nervetumours.org.uk/images/made/images/common/Childhood_Neurological_Conditions_Survey_Website_Header_370x280_800_600_s_c1.png)
Childhood Neurological Conditions Survey Part 2
Find out how you can help shape the future of treatment for Childhood Neurological Conditions such as Neurofibromatosis
Read More![](https://nervetumours.org.uk/images/made/images/common/HCTN0411_370x280_800_600_s_c1.jpg)
Graham’s Super Nine Shines A Light on NF
Graham's 7 year old great-nephew Nathan is his inspiration for his epic challenges to fundraise for NTUK
Read More