The results are in for our Nerve Tumours UK film nominated at the Rare diseases film festival!
05 March 2020
Voting for the Peoples Choice Award at the Rare Film Festival 2020 has now closed and the results are in!
Unfortunately Nerve Tumours UK did not win but we are proud to have been selected and given the opportunity to spread the message for neurofibromatosis & schwannomatosis in the UK. We would like to say a huge thank you to the 260 people who voted for our film "Shine A Light on Neurofibromatosis"!
Congratulations to all of the participants and for anyone who hasn't seen our film yet you can check it out on our YouTube channel below.
Nerve Tumours UK film shortlisted at first ever rare diseases film festival!
Rare Disease UK as part of the Genetic Alliance is hosting the UK’s first ever film festival that is dedicated to raising awareness of rare diseases.
Our entry "Shine A Light on Neurofibromatosis" has been shortlisted as potential winner of 'Best Charity Film' category. The festival had over 50 entries. The Awards Ceremony will take place on the 10th of February at Regent Street Cinema, at 6:30 pm.
During the night the winner of all the categories will be announced.
Nerve Tumours UK took part in the festival in order to raise awareness for those that are affected by Neurofibromatosis Type 1 and Type 2 and reach a wider audience. Please have a look at the video below. We are more than grateful to the Burbdrige family and Emily Owen for sharing their stories on camera. Feel free to share.
– Phil K Matthew Film Director"Making this film and raising awareness of NF Type 1 and NF Type 2 - specifically capturing the stories of those that are affected - was incredibly fascinating. Films should always have a strong narrative and being able to share their inspiring stories and their courageous journey through adversity, was both heart-warming and inspirational. "
Filter News
Quality of Life Survey
If you're living with NF, or a part of someone's network of support; we need your feedback.
Read MoreAdvice: Travelling With NF
Learn how to navigate travel with NF confidently. Essential tips and resources for smooth, stress-free journeys by train, pla
Read MoreJoin the NF1 Cutaneous Neurofibroma Consortium Project
Join a groundbreaking NF1 study to help develop better treatments for neurofibromas. Open to adults with a clinical/genetic N
Read MoreNottingham NF1 Information Day 2024
Join us for an insightful NF1 Information Day in Nottingham on October 5, 2024. Expert talks, Q&A, and community connection.
Read MoreEverybody is born a Champion
NTUK & RBH's 3rd campaign features GB Paralympian Thomas Young, who has NF1, and celebrates those living with NF
Read MoreMario Antona’s NF2 Story
In memory of his dad, who passed away from NF2, Mario cycled 500 km across the Pyrenees to raise funds for Nerve Tumours UK.
Read MoreEva-Hope’s NF2 story
Tahlia describes how the family felt after receiving daughter Eva-Hope's NF2 diagnosis
Read MoreMy Neuro Survey 2024
Fill out #MyNeuroSurvey and help to improve treatment, care and support for everyone affected by neurological conditions.
Read More