Megan’s Story
28 May 2020
My name is Megan. I'm 19 and I was diagnosed with NF1 and mild Scoliosis when I was 11. My NF1 was discovered when I was seeing my paediatrician for something completely different. I'm forever greatful to him for knowing about the condition and recognising it as otherwise, I still may not have known about it to this day.
Since my diagnosis, they've discovered through MRI scans some fibromas in my brain, which are being closely monitored by the amazing neurosurgery team at The Queen Elizabeth hospital. I'm always grateful for everything my doctors have done for me- they've kept me informed, reassured me and made sure that everything was explained to me in regards to treatment options.
Despite my NF1, I am living life to the full and doing the things that I love. I have a scary acting job, I'm studying to be a children's nurse and I'm making the best out of every day. NF1 is a part of who I am, but it doesn't define or control me and I hope that one day we will #EndNF
Filter News
![](https://nervetumours.org.uk/images/made/images/common/Diana_Edwards_Nerve_Tumours_UK_Fundraiser_image_5_800_600_s_c1.png)
Diana’s One Month of Rowing for Neurofibromatosis
Diana is taking on an epic 150k rowing challenge - 5k per day to support her daughter Ellie & our NF community
Read More![](https://nervetumours.org.uk/images/made/images/common/Autistica_Research_Festival_Branded_Header_preview_800_600_s_c1.png)
Autistica Research Festival 2021
See how this year's event went and find out how you can watch the best bits if you couldn't make the conference.
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_1837_Carol_Irving_Nurse_Portrait_preview_800_600_s_c1.jpg)
OneMoreNurse joins the NTUK team in Leeds
We're delighted to announce our new Specialist NF Nurse for Leeds, find out more
Read More![](https://nervetumours.org.uk/images/made/images/common/Nerve_Tumours_UK_Running_Team_Asics_10k_2021_preview_800_600_s_c1.png)
The NTUK running team kick starts 2021’s running season in this year’s Asics 10k!
Check out the year's first major running event - see how our NTUK running team got on!
Read More![](https://nervetumours.org.uk/images/made/images/common/alexs-12-monthsPage-Preview-800-x-500-px_800_600_s_c1.png)
Alex’s 12 months of Running
Alex has completed his incredible 12 months of running for NTUK, totalling a whopping 80km – see how he got on!
Read More![](https://nervetumours.org.uk/images/made/images/common/IMG_3058_colins_highland_walk_370x280_800_600_s_c1.png)
Colin’s West Highland Walk for NF
Colin has completed his epic journey across the highlands to raise awareness for our NF community. See how he got on.
Read More![](https://nervetumours.org.uk/images/made/images/common/Buzz_lightyear_challenge_image_1_-_previerw_800_600_s_c1.png)
To Infinity & Beyond!
Cameron takes on an incredible quest for NF - 34 miles running, 34 miles cycling, 34 miles rowing and a 1 mile walk with Roo!
Read More![](https://nervetumours.org.uk/images/made/images/common/Runderpants_website_header_-preview_800_600_s_c1.jpg)
Runderpants Is Back!
Take part in an event that's absolutely pants! Runderpants is a fun run, in your pants, for our NF community!
Read More![](https://nervetumours.org.uk/images/made/images/common/Image_of_Young_People_previoew_800_600_s_c1.jpg)
TABI (Teen Appearance and Body Image) - CAR Research Study
Find out how you can take part in the Centre for Appearance Research's study for Young People
Read More