Megan’s Skyfall
03 September 2019
Megan's Skyfall
EDIT:
Megan has now completed her Skydive (see photo below). Continue reading however to see Megan's full story detailing her travels with NF.
Having NF is a constant struggle; whether it be dealing with pain, worrying what people think of the skin tags that are all over my torso or overthinking what the future holds for me.
Since the 15th March 2019 I have been back packing the West Coast, Northern and Central Australia sleeping in a tent for the majority of time and have had the most wonderful time, even with the back, knee and hand pain I struggle with some days.
I have been telling everyone I meet about this condition and how it affects me and others, how I have changed my diet to be a more natural, plant based diet in order to try to stem the growths and how Nerve Tumours UK help us all through information days, research, support centres and raising money to allow for more NF nurses across the country.
I have received nothing but love, support and curiosity from these wonderful people I have met and each person wondering why they have never heard of it before.


I'm now on the East coast where I have the opportunity to finally tick sky diving off my bucket list and in the most beautiful setting of Airlie beach
Having already written articles for The Sun and The Mirror newspaper and with my cousin running the Birmingham 10k it's now time to do something to myself to raise more money and awareness for our wonderful charity.
15,000 ft isn't that high right?
Megan having after completed her Skydive!


Filter News

Helen’s Story
Have a read of loving Mum Helen's Story and how she cares for her wonderful daughter Gaby (NF1)
Read More
Looks and Life: A summary of the study
Have a read about the findings from the UWE's "Looks and Life" Study
Read More
Kate’s Story
Have a read of Kate's inspiring story including the introduction of her beautiful daughter Esme, who has NF1, into the world.
Read More
Insights into the work of our support specialists from Mel Murrell
Meet one of our Support Specialists Mel Murrell and read about her impressions on her first year in the role
Read More
World At Her Feet
Christina has wrtiten a blog partly about living with NF1 and partly about her travels. Find it here:
Read More
Arooj: The Fashion Blogger with NF
Arooj Aftab, 22, is an influencer, with NF1, who is known for her baggy fashion style
Read More
Nerve Tumours UK wins Movement for Good award
Find out more about the award and why we received it here:
Read More
Dayna’s Story
Despite suffering many set backs as a result of NF, Dayna still maintains all her ambitions in life. Read her story here:
Read More