Lee’s Santa Dash
09 December 2020
Between the 1st and 25th of December Lee’s aim is to run 100k dressed as Santa on the Isle of Mull! She also has a few elves out and about throughout Mull helping her raise awareness by donning their festive outfits and braving the weather to show their support. As well as raising funds Lee would also like to raise awareness. Mia her daughter was born with Neurofibromatosis Type 1.




– Lee"Yup, I hadn’t heard of it either until Mia was diagnosed a few years ago. Mia just gets on with it but there’s no denying it has a massive effect on her life, it can sometimes be really difficult. Very little is known about NF1, even by most health professionals. Nerve Tumours UK provide crucial support to families living with NF1. Without their support, life with NF1 would be even harder. Nerve Tumours UK are campaigning at the moment to raise funds for one more specialist nurse in the UK. I hope to raise funds to help this campaign #OneMoreNurse."
If you want to support and sponsor Lee:
Donate
Why not join Lee, grab your Santa/Elf suit and go for a run this December! You can organise yourself as Lee did and set up your own fundraiser or you can sign up to our Virtual Santa Dash which takes place throughout the month of December.
Everyone is welcome! Gather all your friends and family to take on this year’s Christmas challenge, spread joy and happiness to the 26,500 people affected with Neurofibromatosis in the UK.
Filter News

Runderpants fun run
Get your Runderpants here! Set up a fun run wearing some special fundraising pants
Read More
Meet Sarah, our new Specialist NF Nurse
Sarah will be based in Leeds, supporting families across Yorkshire and Humberside
Read More
Meet Charmaine, Our New Specialist NF Nurse
Read More
Olivia’s NF1 story
Olivia and mam Kelly share their NF1 story, highlighting school achievements and support from NTUK Specialist Nurses
Read More
Eashan’s NF1 story
'Why Run'... Eashan was diagnosed with NF1 after losing his eyesight when he was 5. His mother Jen tells his story.
Read More
2023 Awareness Campaign
Nerve Tumours UK have joined forces with RBH to raise awareness for a second successive year.
Read More
Disclosing and explaining visible differences - CAR Workshop
Read more about the workshop, featuring additional guidance from Specialist NF Nurse Rebecca Rennison
Read More
Jo Ward’s Avastin Blog
Jo Ward, CEO of NF2 BioSolutions UK, shares a blog about her son Oscar's Avastin journey
Read More
Nigel’s story - Normal is as normal does
Nigel lived a normal life until age 47. The next 20 years took him from NF1 to NF2 to Schwannomatosis to mosaic NF2
Read More