Lee’s Santa Dash
09 December 2020
Between the 1st and 25th of December Lee’s aim is to run 100k dressed as Santa on the Isle of Mull! She also has a few elves out and about throughout Mull helping her raise awareness by donning their festive outfits and braving the weather to show their support. As well as raising funds Lee would also like to raise awareness. Mia her daughter was born with Neurofibromatosis Type 1.
– Lee"Yup, I hadn’t heard of it either until Mia was diagnosed a few years ago. Mia just gets on with it but there’s no denying it has a massive effect on her life, it can sometimes be really difficult. Very little is known about NF1, even by most health professionals. Nerve Tumours UK provide crucial support to families living with NF1. Without their support, life with NF1 would be even harder. Nerve Tumours UK are campaigning at the moment to raise funds for one more specialist nurse in the UK. I hope to raise funds to help this campaign #OneMoreNurse."
If you want to support and sponsor Lee:
DonateWhy not join Lee, grab your Santa/Elf suit and go for a run this December! You can organise yourself as Lee did and set up your own fundraiser or you can sign up to our Virtual Santa Dash which takes place throughout the month of December.
Everyone is welcome! Gather all your friends and family to take on this year’s Christmas challenge, spread joy and happiness to the 26,500 people affected with Neurofibromatosis in the UK.
Filter News
Tate’s Shine A Light Bikeathon
Tate's 4th NTUK fundraiser was a Shine A Light Bikeathon, having learnt to cycle in just 3 weeks!
Read MoreAccess to your GP
We want to hear from you… Help us improve services by completing a quick survey
Read MoreLondon Marathon 2024 Team NTUK
Thank you and congratulations to Team NTUK for their marathon effort
Read MoreThomas’ NF1 story
Thomas describes growing up with NF1, supporting Liverpool FC and taking on challenges with support from his wife
Read MoreMeet Jessica, new Specialist NF Nurse
Jessica will work with Specialist NF Nurse Helen Tomkins, supporting families across Devon and Cornwall.
Read MoreRare Disease Day 2024
Read our update on the events and meetings NTUK attended to help raise awareness of NF
Read MoreJohnathan’s story
Johnathon's family are spreading awareness of the importance of attending health checks and advocating for vulnerable people
Read MoreJen’s NF1 story
Jen praises the great support received since her NF1 diagnosis, allowing her to thrive & achieve a 1st class degree.
Read MoreCharlotte & Evie’s story
'Sticker Queen' Evie is 4 years old and was diagnosed with NF1 after tests for a 'lazy eye'.
Read More