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K-Star Wrestling in aid of NTUK

23 September 2019

K-Star Wrestling in aid of NTUK

Thank you so much to Carl Brooks and his K-Star Wrestlers for putting on such an exciting and wonderful event in memory of Carl's incredibly brave sister, Tanya Brooks, who sadly passed away in 2014 as a result of her NF2.

The event took place at the OLD OSCOT WMC Birmingham and was thoroughly enjoyed by the many who turned up to support Carl and his K-Stars. It is certainly one of the more unique fundraisers we have ever had in aid of Nerve Tumours UK and we are so glad to see it was such a success 😊

The fundraiser was set up in memory of Carl's sister Tanya

Thanks again Carl 😊 

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Becky’s Story

From dealing with her family's NF1 to improving her fitness and running marathons, have a read of Becky's amazing story here:

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Beth’s “Novaspers Online Dog Show”

Find out more about Beth's online dog show here:

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“Charity Shave Off” for NF in Northern Ireland

Janice and her family recently held a charity shave off in Northern Ireland. Find out more about the event here:

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Blackpool Magic Convention 2020

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Reflections on 2019

Check out our reflection on what we feel was an incredibly succesful 2019 for the charity:

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Helen’s Story as told by her Mum Pauline

Due to her NF1, Helen has faced several struggles. Mum Pauline has openly shared her daughter's experiences with us here:

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Nicola’s NF2 Journey

Nicola creates her own YouTube videos to help promote NF2 awareness. Find out more about her NF2 journey here:

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Making the Future of Work inclusive of persons with disability

Check out James' recent presentation at a conference in Geneva highlighting issues of "face equality" in the workplace

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The Royal Society - A Quest for the perfect Human…? A debate on the implications of human genome editing

Find out more about the debate recently undertaken at The Royal Society here:

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Registered Charity Number: 1078790 and SC045051

Nerve Tumours UK has taken reasonable care to ensure that the information contained on this website and in its newsletters, literature is accurate. Nerve Tumours UK cannot accept liability for any errors or omissions, or for information becoming out-of-date. Any information given is not a substitute for getting appropriate medical advice from your own GP or other healthcare professional.

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Gareth Evans, MD, University of Manchester, UK

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Understanding the impact that a tentative diagnosis has on a parent. Information and access to the existing NTUK and Specialist Nerve Tumours medical and non medical care network.

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Masterclasses in NF: Surgery in NF2 - Michel Kalamarides & Andrew King

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Thomas Pletschko, PhD, Medical University of Vienna, Austria

Verena Rosenmayr, Clinical Psychologist, Medical University of Vienna, Austria

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INFER (International NF Educational Resources) is a series of online educational lectures for medical professionals by leading neurofibromatosis experts. The Masterclasses take place online approximately once a month, each on a different topic, and include real-time interaction between the expert presenter and the participants. The presentations are conducted in English, with real-time audio interpretation available in 6 additional languages: French, German, Italian, Portuguese, Russian, and Spanish. A recording of each INFER masterclass is then be made available online in each language for those who could not attend an event. INFER is an initiative of Children’s Tumor Foundation Europe, supported by an educational grant from AstraZeneca. https://ctfeurope.org/research/masterclasses-in-nf

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