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Family Lives Charity

22 July 2019

Family Lives Charity

Family Lives is a charity that carries out some amazing work in helping to provide support in all aspects of family life. It is a charity that although not directly associated with Nerve Tumours UK, is still one we would like to share as we feel many of our members may be able to benefit from the services they provide. 

They also have a helpline in which you can get advice and support whenever you need it.

They are strong believers in "happy children come from happy families". If you would like to visit their website you can do so by clicking on the link below: 

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Eden Study

Investigating early social, communication and attention development in babies who have NF1/ or a parent has NF1

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Douglas Thomson’s NF1 Story

Douglas describes life with NF1 and how losing his leg was one of the best things to happen to him

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Tricia’s Wingwalk and Birthday Fundraiser for Sarah and Keith

Tricia's fundraising wingwalk in memory of her daughter Sarah who had NF1, and to remember her father Keith

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Student Voice Prize 2021

The 2021 Student Voice Prize opens on 6th October! #DareToThinkRare for the 8th annual essay competition!

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Centre for Appearance Research - Parent Support Materials Study

The Centre for Appearance Research is doing a study on parent support materials - can you help?

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Centre for Appearance Research - YP Face IT

YP Face IT offers online support for young people with conditions or injuries affecting their appearance

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Counselling support from Changing Faces

Changing Faces - Counselling support: confidential one to one support sessions for people with a visible difference

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Tim’s Story: Living With Neurofibromatosis – it’s a family thing

Tim tells us how Nerve Tumours UK proved to be an invaluable resource and support to him and his family as he was growing up

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Dalvinder’s 100km Ultra Challenge for NF

Dalvinder on the 100km Ultra Challenge Thames Path walk to raise money for NF

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