Face Equality Week 2020
19 May 2020
What is Face Equality Week?
Face Equality Week is the UK’s only campaign to ensure that everyone is treated fairly and equally whatever the appearance of their face or body. It’s a special time of celebration and action, which champions our community, gives a voice to more people with a visible difference, and changes people’s perceptions.
When is Face Equality Week 2020?
We are delighted to announce that Face Equality Week 2020 will be taking place from 18 to 22 May, with Face Equality Day on Wednesday 20 May.

What’s planned for Face Equality Week 2020?
Our theme this year focuses on representation, ensuring people with a visible difference are seen and heard during this time of crisis. From not being able to rely on usual support networks, to feeling anxious about how to manage with stares, comments and abuse once the lockdown eases, people with visible differences are facing unique challenges during this pandemic. That's why it's so important to share the stories and experiences of lockdown from our community, including hopes for the future. Join their Butterfly Challenge or check out their Wellbeing Support Pack and get active on
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Meet Helen
Helen is the Specialist NF Advisor for Devon and Cornwall and is based at Derriford Hospital in Plymouth.
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Meet Rebecca
Specialist NF Nurse Rebecca is Lead Nurse, NTUK and is based at the Genetics Institute at the Centre for Life in Newcastle
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World Mental Health Day 2023
NTUK (as part of the Neurological Alliance) has signed a joint letter aimed at improving access to mental health services
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CAR Research visible difference experiences during recruitment
Research participants required, find out more and take part
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Oliver Bromley’s NF Story
Oliver Bromley, with NF1, was asked to leave a restaurant due to his appearance, sparking a call for greater awareness and ed
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NF Academy 2023 - Ella’s Blog
Ella, who has NF1, attended the week-long 2023 NF Academy in Portugal, meeting young adults with NF from all over Europe
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University of Manchester Research
Read about the latest PHD research, involving Nerve Tumours UK, at the University of Manchester
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New Research Study for Children and Young People with NF1
Find out more about the study and how you can participate here
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Neurofibromatosis Type 2 name change
The new name for Neurofibromatosis Type 2 is NF2-related-Schwannomatosis (NF2)
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