Face Equality Week 2020

19 May 2020

What is Face Equality Week?

Face Equality Week is the UK’s only campaign to ensure that everyone is treated fairly and equally whatever the appearance of their face or body. It’s a special time of celebration and action, which champions our community, gives a voice to more people with a visible difference, and changes people’s perceptions.

When is Face Equality Week 2020?

We are delighted to announce that Face Equality Week 2020 will be taking place from 18 to 22 May, with Face Equality Day on Wednesday 20 May.

What’s planned for Face Equality Week 2020?

Our theme this year focuses on representation, ensuring people with a visible difference are seen and heard during this time of crisis. From not being able to rely on usual support networks, to feeling anxious about how to manage with stares, comments and abuse once the lockdown eases, people with visible differences are facing unique challenges during this pandemic. That's why it's so important to share the stories and experiences of lockdown from our community, including hopes for the future. Join their Butterfly Challenge or check out their Wellbeing Support Pack and get active on

https://www.changingfaces.org.uk/campaign/faceequalityweek

Owen family Awareness Event

The event featured guest speaker Prof. Meena Upadhyaya OBE, Member of our Board of Trustees & Medical Advisory Board

Running for Wilbur

Tim is running the Guildford 10k in October, to show support to his son Wilbur who has NF1

Alice’s NF studies

Alice is researching healthcare experiences of individuals with NF1 for her Genetic & Genomic Counselling MSc

Centre for Appearance Research - The Parenting Toolkit

Research evaluation to find out how effective ‘The Parenting Toolkit’ is at supporting parents of children with NF

Celtic Crossing NTUK fundraiser

On Wednesday 28 June, a team of 8, led by Paul Aubery, paddled from the Isles of Scilly to Sennen Cove in Cornwall.

NF Awareness Day Fundraiser at Fyling Hall School

Bea's school held a blue & green themed fundraiser on World NF Awareness Day

Eden Study

Investigating early social, communication and attention development in babies who have NF1/ or a parent has NF1

Bethany’s South Coast Challenge

Bethany is taking on the 25km South Coast challenge to give back after recovering from nerve tumour surgery

Eden-P Research Study

Participants required for research study for pregnant women who have a family history of NF1

Face Equality Week 2020

When is Face Equality Week 2020?