Face Equality Week 2020
19 May 2020
What is Face Equality Week?
Face Equality Week is the UK’s only campaign to ensure that everyone is treated fairly and equally whatever the appearance of their face or body. It’s a special time of celebration and action, which champions our community, gives a voice to more people with a visible difference, and changes people’s perceptions.
When is Face Equality Week 2020?
We are delighted to announce that Face Equality Week 2020 will be taking place from 18 to 22 May, with Face Equality Day on Wednesday 20 May.

What’s planned for Face Equality Week 2020?
Our theme this year focuses on representation, ensuring people with a visible difference are seen and heard during this time of crisis. From not being able to rely on usual support networks, to feeling anxious about how to manage with stares, comments and abuse once the lockdown eases, people with visible differences are facing unique challenges during this pandemic. That's why it's so important to share the stories and experiences of lockdown from our community, including hopes for the future. Join their Butterfly Challenge or check out their Wellbeing Support Pack and get active on
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Connor’s NF2 story
Connor's mum Tracy's maternal instincts proved invaluable when fighting to get Connor's symptoms investigated
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Jo’s Shine A Light Family Fun Day
The family fundraiser was supported by Dr Shruti Garg, member of the Nerve Tumours UK Medical Advisory Board
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Erin’s 24 hour charity live stream
Erin has NF1 and is raising awareness with a 24 hour live charity stream to Shine A Light on NF
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Tate’s Shine A Light Bikeathon
Tate's 4th NTUK fundraiser was a Shine A Light Bikeathon, having learnt to cycle in just 3 weeks!
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Access to your GP
We want to hear from you… Help us improve services by completing a quick survey
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London Marathon 2024 Team NTUK
Thank you and congratulations to Team NTUK for their marathon effort
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Thomas’ NF1 story
Thomas describes growing up with NF1, supporting Liverpool FC and taking on challenges with support from his wife
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Meet Jessica, new Specialist NF Nurse
Jessica will work with Specialist NF Nurse Helen Tomkins, supporting families across Devon and Cornwall.
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Rare Disease Day 2024
Read our update on the events and meetings NTUK attended to help raise awareness of NF
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