Face Equality Week 2020
19 May 2020
What is Face Equality Week?
Face Equality Week is the UK’s only campaign to ensure that everyone is treated fairly and equally whatever the appearance of their face or body. It’s a special time of celebration and action, which champions our community, gives a voice to more people with a visible difference, and changes people’s perceptions.
When is Face Equality Week 2020?
We are delighted to announce that Face Equality Week 2020 will be taking place from 18 to 22 May, with Face Equality Day on Wednesday 20 May.

What’s planned for Face Equality Week 2020?
Our theme this year focuses on representation, ensuring people with a visible difference are seen and heard during this time of crisis. From not being able to rely on usual support networks, to feeling anxious about how to manage with stares, comments and abuse once the lockdown eases, people with visible differences are facing unique challenges during this pandemic. That's why it's so important to share the stories and experiences of lockdown from our community, including hopes for the future. Join their Butterfly Challenge or check out their Wellbeing Support Pack and get active on
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Stronger Together Rare Conference
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Gisela’s NF2 story
Gisela has NF2 & has a positive outlook on life, she has just completed a 265km walk during World NF Awareness Month
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Oxford’s John Radcliffe Hospital celebrate NF2 Awareness Day
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Care Quality Commission survey
Take part - if you are from an ethnic minority, have a long term physical condition & live in selected SW London boroughs
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CAR research family planning decision making
This CAR UWE research explores family planning & decision making for people with a visible difference which can be inherited
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Shine A Light 2024
The Shine A Light 2024 campaign had 133 buildings around the UK & the Republic of Ireland lit up in blue!
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Guidance on sudden hearing loss in NF2-related Schwannomatosis (NF2-SWN)
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NF2 Day 2024 by Emily Owen
A reflective poem for World NF2 Day, to celebrate people living with NF2
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