European Neurofibromatosis Meeting 2020
26 November 2020
This year's meeting is to be virtual, and so you are invited to join the public day, Saturday 12 December.
"This day is meant for people with NF and their parents/caretakers from a social perspective, but also health care professionals, paramedics and all interested in NF. The importance of the ‘Public Day’ comes from the complexity of conditions related to NF, unknown and misunderstood, with difficulty to inform on developments in NF."
The registration fee is €25.00
The European NF meeting is a key platform for established as well as starting professionals in NF research and clinical care. Health professionals, researchers and patients from all over the world, including members of the Nerve Tumours UK Medical Advisory Board: Professor Gareth Evans, Chair; Professor Rosalie Ferner, and Dr Shruti Garg will join the online conference and exchange knowledge and ideas and establish new collaborations. Bringing together all different disciplines involved in NF research and care, the European NF meeting offers a forum for advancing basic, translational and clinical research in NF and related fields, with one purpose: to improve the quality of life of NF patients.
Prof Gareth Evans
Prof Rosalie Ferner
Dr Shruti Garg --
The 19th European Neurofibromatosis meeting is organized by the Erasmus MC national NF1 Expertise (ENCORE) and the patient organization for neurofibromatosis in the Netherlands (NFVN).
Filter News
Team NTUK London Marathon 2023
Meet some of our runners and read their inspiring marathon motivation stories
Read MorePip’s London Marathon
Pip describes life with NF1 & limited vision and his motivation to run the London Marathon
Read MoreThe Scottish Parliament Rare Disease Day Online Reception 15/03/2023
NTUK attended the Scottish Parliament Rare Disease Day online reception
Read MoreLiz’s NF1 story: This is the real me
Liz describes growing up with NF1, difficulties at school, spinal surgery and raising awareness by writing a poem about NF.
Read MoreSupport Derry’s and Dan’s Marathon Run for NTUK
Dan and Derry will be taking on the London Marathon in support of Nerve Tumours UK
Read MoreRagbir’s London Marathon
Ragbir is the Paediatric Lead for NF1 in Leeds and is running the London Marathon
Read MoreRare Disease Day 2023
NTUK joined in with Rare Disease Day 2023, helping raise awareness of how better coordination of care can improve lives.
Read MoreAshley’s NF1 story
Ashley loves red pandas, he's a 32 year old IT Specialist and has NF1. He is running a half marathon to raise NF awareness
Read More