European Neurofibromatosis Meeting 2020
26 November 2020

This year's meeting is to be virtual, and so you are invited to join the public day, Saturday 12 December.
"This day is meant for people with NF and their parents/caretakers from a social perspective, but also health care professionals, paramedics and all interested in NF. The importance of the ‘Public Day’ comes from the complexity of conditions related to NF, unknown and misunderstood, with difficulty to inform on developments in NF."
The registration fee is €25.00
The European NF meeting is a key platform for established as well as starting professionals in NF research and clinical care. Health professionals, researchers and patients from all over the world, including members of the Nerve Tumours UK Medical Advisory Board: Professor Gareth Evans, Chair; Professor Rosalie Ferner, and Dr Shruti Garg will join the online conference and exchange knowledge and ideas and establish new collaborations. Bringing together all different disciplines involved in NF research and care, the European NF meeting offers a forum for advancing basic, translational and clinical research in NF and related fields, with one purpose: to improve the quality of life of NF patients.

Prof Gareth Evans

Prof Rosalie Ferner

Dr Shruti Garg --
The 19th European Neurofibromatosis meeting is organized by the Erasmus MC national NF1 Expertise (ENCORE) and the patient organization for neurofibromatosis in the Netherlands (NFVN).
Filter News

Johnathan’s story
Johnathon's family are spreading awareness of the importance of attending health checks and advocating for vulnerable people
Read More_370x280_800_600_s_c1.jpg)
Jen’s NF1 story
Jen praises the great support received since her NF1 diagnosis, allowing her to thrive & achieve a 1st class degree.
Read More_800_600_s_c1.png)
Charlotte & Evie’s story
'Sticker Queen' Evie is 4 years old and was diagnosed with NF1 after tests for a 'lazy eye'.
Read More_800_600_s_c1.png)
Luke’s Story
Luke had NF1 since childhood. Now an adult, surgery last year has enabled him to play football and do whatever he wants
Read More_800_600_s_c1.png)
Charlotte’s Story
When Charlotte was 6, she was diagnosed with NF1, along with her brother & dad. Now she is on a mission to raise awareness
Read More
Eden P for healthcare professionals
Healthcare professionals, who provide support to expectant parents with NF1 are invited to take part in the Eden P study
Read More_370x280_800_600_s_c1.jpg)
Nicole’s story
Nicole has NF2, she describes the preparations and the absolute joyful experience of the birth of her son Lewis
Read More
CAR Research - exploring family planning decisions
Research Advisors required to help explore what influences decisions about having children and what support would be helpful
Read More
Corporate Fundraising 2024
Find out some of the different ways your company can support Nerve Tumours UK
Read More